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Rareshare News Articles


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August 2018 Newsletter

Publication date: 27 Aug 2018

Newsletter

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What is RGTF?

Publication date: 24 Aug 2018

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RareShare Team Spotlight

Publication date: 24 Aug 2018

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Listen to our latest podcast on coping with a child's rare disease diagnosis

Publication date: 24 Aug 2018

Community: Atypical Hemolytic Uremic Syndrome

Podcast

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RG Looking for Patient Stories

Publication date: 17 Aug 2018

Patient Story

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Coping With Your Child's Diagnosis: The Mother of a Rare Disease Patient on How She Found a Supportive Community

Publication date: 17 Aug 2018

Podcast

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Rare Disease News Links on RareShare

Publication date: 6 Jul 2018

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A Huntington’s Disease Patient

Publication date: 16 May 2018

Community: Huntington's Disease

Podcast

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Receiving a Rare Disease Diagnosis: A Huntington’s Disease Patient Shares His Experience and Advice for Coping with a New Diagnosis (Patient Navigation)

Publication date: 14 May 2018

Community: Huntington's Disease

Podcast

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April 2018 Newsletter

Publication date: 25 Apr 2018

Newsletter

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Gene Therapy Approvals Bring Hope to Rare Disorder Communities

Publication date: 16 Apr 2018

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The Power of Community: How Patient Communities Provide Hope and Help Further Rare Disease Research (Patient Navigation)

Publication date: 6 Mar 2018

Podcast

Heritable disease research

Contribute to the Future of Heritable Disease Research

Publication date: 26 Jan 2018

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Race for 7 - The Race Against Rare Diseases Gathers Momentum

Publication date: 18 Jan 2018

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December 2017 Newsletter

Publication date: 17 Dec 2017

Newsletter

Disorder film festival

DISORDER: Rare Disease Film Festival

Publication date: 13 Dec 2017

Video Interview

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iHope continues for Rare Genomics Families

Publication date: 13 Dec 2017

Video Interview

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RareShare Reaches Out

Publication date: 13 Dec 2017

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Rare Genomics Institute Helps in Hailey-Hailey Disease Treatment Study

Publication date: 13 Dec 2017

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Antisynthetase Syndrome Ask the Experts Podcast Series, Session II - 11/20/2017

Publication date: 24 Nov 2017

Community: Antisynthetase Syndrome

Podcast