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Rareshare News Articles


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Stop Making Sense: Antisense Therapies for Rare Diseases Show Promise

Publication date: 21 Apr 2019

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Rare Genomics at World Orphan Disease Congress

Publication date: 19 Apr 2019

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Rare Genomics at World Orphan Disease Congress

Publication date: 19 Apr 2019

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All About Genomic Sequencing for Rare Disease Patients: A Focus on iHope

Publication date: 19 Apr 2019

Podcast

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December 2018 Newsletter

Publication date: 19 Dec 2018

Newsletter

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Growing up With a Rare Disease: An Alagille Syndrome Warrior on Understanding Her Rare Disease and Participating in Research

Publication date: 17 Dec 2018

Podcast

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RareShare's 10th Anniversary

Publication date: 14 Dec 2018

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Gene Repair Offers Hope and Challenges

Publication date: 14 Dec 2018

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Recruitment for Danon Disease Study

Publication date: 9 Dec 2018

Community: Danon Disease

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August 2018 Newsletter

Publication date: 27 Aug 2018

Newsletter

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What is RGTF?

Publication date: 24 Aug 2018

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RareShare Team Spotlight

Publication date: 24 Aug 2018

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RG Looking for Patient Stories

Publication date: 17 Aug 2018

Patient Story

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Coping With Your Child's Diagnosis: The Mother of a Rare Disease Patient on How She Found a Supportive Community

Publication date: 17 Aug 2018

Podcast

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Rare Disease News Links on RareShare

Publication date: 6 Jul 2018

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A Huntington’s Disease Patient

Publication date: 16 May 2018

Community: Huntington's Disease

Podcast

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Receiving a Rare Disease Diagnosis: A Huntington’s Disease Patient Shares His Experience and Advice for Coping with a New Diagnosis (Patient Navigation)

Publication date: 14 May 2018

Community: Huntington's Disease

Podcast

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April 2018 Newsletter

Publication date: 25 Apr 2018

Newsletter

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Gene Therapy Approvals Bring Hope to Rare Disorder Communities

Publication date: 16 Apr 2018

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The Power of Community: How Patient Communities Provide Hope and Help Further Rare Disease Research (Patient Navigation)

Publication date: 6 Mar 2018

Podcast