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Rareshare News Articles


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Netflix rare disease documentary Diagnosis airs August 16th

Publication date: 14 Aug 2019

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3 Perspectives on Facing a Rare Disease: A Patient, a Caregiver, and an Expert Discuss Diagnosis and Treatment of Pulmonary Fibrosis

Publication date: 8 Jun 2019

Community: Idiopathic Pulmonary Fibrosis

Podcast

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Friedreich's Ataxia Research Alliance Sponsors Cycling Events

Publication date: 28 Apr 2019

Community: Friedreich's Ataxia

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April 2019 Newsletter

Publication date: 22 Apr 2019

Newsletter

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RGDI Promotes Drug Discovery

Publication date: 21 Apr 2019

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Stop Making Sense: Antisense Therapies for Rare Diseases Show Promise

Publication date: 21 Apr 2019

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Rare Genomics at World Orphan Disease Congress

Publication date: 19 Apr 2019

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Rare Genomics at World Orphan Disease Congress

Publication date: 19 Apr 2019

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All About Genomic Sequencing for Rare Disease Patients: A Focus on iHope

Publication date: 19 Apr 2019

Podcast

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December 2018 Newsletter

Publication date: 19 Dec 2018

Newsletter

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Growing up With a Rare Disease: An Alagille Syndrome Warrior on Understanding Her Rare Disease and Participating in Research

Publication date: 17 Dec 2018

Podcast

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RareShare's 10th Anniversary

Publication date: 14 Dec 2018

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Gene Repair Offers Hope and Challenges

Publication date: 14 Dec 2018

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Recruitment for Danon Disease Study

Publication date: 9 Dec 2018

Community: Danon Disease

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August 2018 Newsletter

Publication date: 27 Aug 2018

Newsletter

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What is RGTF?

Publication date: 24 Aug 2018

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RareShare Team Spotlight

Publication date: 24 Aug 2018

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RG Looking for Patient Stories

Publication date: 17 Aug 2018

Patient Story

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Coping With Your Child's Diagnosis: The Mother of a Rare Disease Patient on How She Found a Supportive Community

Publication date: 17 Aug 2018

Podcast

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Rare Disease News Links on RareShare

Publication date: 6 Jul 2018