Publication date: 17 Jun 2020
Community:
Von Hippel-Lindau Disease
Von-Hippel Lindau Syndrome Patients or Caregivers Wanted for Paid Project
RareShare has been contacted by a market research group offering a paid opportunity for Von Hippel-Lindau patients and caregivers in Germany, France or the UK to share their experiences through an online digital journal or a web-cam based interview.