Even though there are 7,000 known rare conditions, many of the 300 million affected patients around the globe feel alone. RareShare was founded in 2008 to give these people and their loved ones a sense of community; a place to sympathize, celebrate, and share their experiences and expertise, together.
Create a sense of community for those affected by rare disorders
Communicate with others that are affected by the same condition
Contribute condition-related information, experiences, support, and resources
Rare Genomics Institute and RareShare are proud to invite you for the upcoming podcast discussing:
Living with Adrenomyeloneuropathy (AMN) -A Clinical & Research Perspective
With the relaunch of RareShare.org, we would like our members to join in advancing the website’s vision. Our goal is to support new and existing communities to become an interactive experience rather than static online forums. In order to achieve this, RareShare believes it will take a collaborative effort. We can accomplish this by building even stronger relationships with our current community members and the volunteers who contribute their time and effort to building and maintaining the website.
Visit our how-to guides page to find helpful guides on how to use the rareshare site.
Visit our Frequently Asked Questions page to find the answers to some of the most commonly asked questions.
It's free and easy to join RareShare.
SIGN UP NOW
Join Rareshare to meet other people that have been touched by rare diseases. Learn, engage, and grow with our communities.
FIND YOUR COMMUNITY
Our rare disease resources include e-books and podcasts
Community leaders are active users that have been touched by the rare disease that they are a part of. Not only are they there to help facilitate conversations and provide new information that is relevant for the group, but they are there for you and to let you know you have a support system on Rareshare.