Even though there are 7,000 known rare conditions, many of the 300 million affected patients around the globe feel alone. RareShare was founded in 2008 to give these people and their loved ones a sense of community; a place to sympathize, celebrate, and share their experiences and expertise, together.
Create a sense of community for those affected by rare disorders
Communicate with others that are affected by the same condition
Contribute condition-related information, experiences, support, and resources
RareShare is pleased to announce the February 28, 2017 launch of our new redesigned website– an online community where those affected by rare diseases can find support, guidance and information. It is hoped that this will be an active space where the isolation and uncertainty accompanying a rare disease diagnosis can be partially lifted.
Visit our how-to guides page to find helpful guides on how to use the rareshare site.
Visit our Frequently Asked Questions page to find the answers to some of the most commonly asked questions.
It's free and easy to join RareShare.
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Join Rareshare to meet other people that have been touched by rare diseases. Learn, engage, and grow with our communities.
FIND YOUR COMMUNITY
Our rare disease resources include e-books and podcasts
Community leaders are active users that have been touched by the rare disease that they are a part of. Not only are they there to help facilitate conversations and provide new information that is relevant for the group, but they are there for you and to let you know you have a support system on Rareshare.