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Caps patient interview with ian stedman

CAPS—Patient Interview with Ian Stedman

Publication date: 1 Jul 2020

Associated community Muckle-Wells Syndrome

We had the pleasure of speaking with Ian Stedman—a lawyer, a father of two, and a rare disease patient and advocate from Toronto.

He has Muckle Wells Syndrome, which is a variant of Cryopyrin-Associated Periodic Syndrome, or CAPS. Ian speaks to his experience with the diagnoses, treatment, and general navigation of the health care system as a patient.


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