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Rareshare News Articles

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AI to Advance Rare Disease Understanding

Publication date: 3 Nov 2021

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Recently added RareShare communities

Publication date: 18 Jun 2021


May 2021 Newsletter

Publication date: 27 May 2021


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The Diagnostic Odyssey

Publication date: 26 May 2021



Ethan and Me Podcast

Publication date: 25 May 2021

Community: Hunter Syndrome


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May 15th is MPS Awareness Day!

Publication date: 13 May 2021

Community: Hunter Syndrome

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Do you have a story to share?

Publication date: 12 Mar 2021


Rare Disease Day 2021

Publication date: 3 Mar 2021


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Access Mediaplanet's Rare Disease Day Campaign

Publication date: 27 Feb 2021

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Petition Congress to Help Experts Accelerate Rare Treatments

Publication date: 20 Feb 2021

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Add your story to Rare Genomics "I am rare because..." blog.

Publication date: 15 Feb 2021

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Rare Diseases as Pre-Existing Conditions

Publication date: 11 Dec 2020

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Meet the Rareshare Team

Publication date: 9 Dec 2020


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Understanding the Pros and Cons of Genetic Testing

Publication date: 2 Dec 2020

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Parenting with a Rare Disease Child Blog

Publication date: 16 Sep 2020

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Rare Advocates

Publication date: 22 Aug 2020

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Rare Genomics Institute announces its 2020 BeHEARD grant winners

Publication date: 11 Aug 2020

Caps patient interview with ian stedman

CAPS—Patient Interview with Ian Stedman

Publication date: 1 Jul 2020

Community: Muckle-Wells Syndrome

Video Interview


RARE with COVID registry for rare disease patients with COVID-19

Publication date: 25 Jun 2020

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Neutropenia Patient Testing

Publication date: 23 Jun 2020

Community: Cyclic Neutropenia