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Rareshare News Articles


Rentons

May 2021 Newsletter

Publication date: 27 May 2021

Newsletter

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The Diagnostic Odyssey

Publication date: 26 May 2021

Newsletter

Rentons

Ethan and Me Podcast

Publication date: 25 May 2021

Community: Hunter Syndrome

Podcast

Huntersyndrome  1

May 15th is MPS Awareness Day!

Publication date: 13 May 2021

Community: Hunter Syndrome

Whatsyourstory  1

Do you have a story to share?

Publication date: 12 Mar 2021

Raredieaseday2021

Rare Disease Day 2021

Publication date: 3 Mar 2021

Newsletter

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Access Mediaplanet's Rare Disease Day Campaign

Publication date: 27 Feb 2021

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Petition Congress to Help Experts Accelerate Rare Treatments

Publication date: 20 Feb 2021

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Add your story to Rare Genomics "I am rare because..." blog.

Publication date: 15 Feb 2021

National cancer institute rounded min

Rare Diseases as Pre-Existing Conditions

Publication date: 11 Dec 2020

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Meet the Rareshare Team

Publication date: 9 Dec 2020

Podcast

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Understanding the Pros and Cons of Genetic Testing

Publication date: 2 Dec 2020

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Parenting with a Rare Disease Child Blog

Publication date: 16 Sep 2020

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Rare Advocates

Publication date: 22 Aug 2020

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Rare Genomics Institute announces its 2020 BeHEARD grant winners

Publication date: 11 Aug 2020

Caps patient interview with ian stedman

CAPS—Patient Interview with Ian Stedman

Publication date: 1 Jul 2020

Community: Muckle-Wells Syndrome

Video Interview

Joinrarewithcovid

RARE with COVID registry for rare disease patients with COVID-19

Publication date: 25 Jun 2020

Neutropenia genetic testing flyer for hcps logo

Neutropenia Patient Testing

Publication date: 23 Jun 2020

Community: Cyclic Neutropenia

Newsletter

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Von-Hippel Lindau Syndrome Patients or Caregivers Wanted for Paid Project

Publication date: 17 Jun 2020

Community: Von Hippel-Lindau Disease

Newsletter

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NORD launches program to assist rare disease patients impacted by COVID-19

Publication date: 21 May 2020