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Rareshare News Articles

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Volunteers are needed for a kidney disease clinical trial.

Publication date: 2 Aug 2022

Community: Membranoproliferative Glomerulonephritis

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Early Diagnosis of Rare Diseases

Publication date: 23 Jul 2022


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LELANTOS II Duchenne Muscular Dystrophy Study

Publication date: 11 Feb 2022

Community: Muscular Dystrophy, Duchenne and Becker Types

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Clinic for Special Children Podcast

Publication date: 5 Feb 2022


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AI to Advance Rare Disease Understanding

Publication date: 3 Nov 2021


May 2021 Newsletter

Publication date: 27 May 2021


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The Diagnostic Odyssey

Publication date: 26 May 2021



Ethan and Me Podcast

Publication date: 25 May 2021

Community: Hunter Syndrome


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Rare Diseases as Pre-Existing Conditions

Publication date: 11 Dec 2020

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Understanding the Pros and Cons of Genetic Testing

Publication date: 2 Dec 2020

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Parenting with a Rare Disease Child Blog

Publication date: 16 Sep 2020

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Rare Advocates

Publication date: 22 Aug 2020

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Rare Genomics Institute announces its 2020 BeHEARD grant winners

Publication date: 11 Aug 2020

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CAPS—Patient Interview with Ian Stedman

Publication date: 1 Jul 2020

Community: Muckle-Wells Syndrome

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Von-Hippel Lindau Syndrome Patients or Caregivers Wanted for Paid Project

Publication date: 17 Jun 2020

Community: Von Hippel-Lindau Disease


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April 2020 Newsletter

Publication date: 27 Apr 2020


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Unrare Challenges

Publication date: 26 Apr 2020

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Listen to the first episodes of the Canadian Broadcasting Company podcast series on Unlocking Bryson's Brain

Publication date: 11 Mar 2020

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Diagnosed with a rare disease, fired from a job, graduating from law school and becoming a rare disease advocate, Candace Lerman tells her story in an inspirational podcast.

Publication date: 22 Jan 2020

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Don’t Sell Yourself Short: Having a Career after a Rare Disease Diagnosis

Publication date: 22 Jan 2020