Cookies help us deliver our services. By using our services, you agree to our use of cookies. Learn more

Rareshare News Articles

Picsea eqltydzrx7u unsplash 800 534 compressed

Parenting with a Rare Disease Child Blog

Publication date: 16 Sep 2020

Default article

Rare Advocates

Publication date: 22 Aug 2020

Default article

Rare Genomics Institute announces its 2020 BeHEARD grant winners

Publication date: 11 Aug 2020

Caps patient interview with ian stedman

CAPS—Patient Interview with Ian Stedman

Publication date: 1 Jul 2020

Community: Muckle-Wells Syndrome

Video Interview


RARE with COVID registry for rare disease patients with COVID-19

Publication date: 25 Jun 2020

Neutropenia genetic testing flyer for hcps logo

Neutropenia Patient Testing

Publication date: 23 Jun 2020

Community: Cyclic Neutropenia



Von-Hippel Lindau Syndrome Patients or Caregivers Wanted for Paid Project

Publication date: 17 Jun 2020

Community: Von Hippel-Lindau Disease



NORD launches program to assist rare disease patients impacted by COVID-19

Publication date: 21 May 2020

Rdpatientsurvey 640x326

NIH-Supported Survey on Impact of COVID-19 on Rare Disease Patients

Publication date: 14 May 2020

C153952f 8bda 44a7 913e cf1f650deaf1 copy

April 2020 Newsletter

Publication date: 27 Apr 2020


Default article

Unrare Challenges

Publication date: 26 Apr 2020

Default article

COVID-19 may present elevated risks for some rare disease patients

Publication date: 28 Mar 2020

Content unlockingbrysonsbrain 650

Listen to the first episodes of the Canadian Broadcasting Company podcast series on Unlocking Bryson's Brain

Publication date: 11 Mar 2020

Image asset

Rare Genomics Institute Announces its 2020 BeHEARD Rare Disease Science Technology Grants for Researchers, Foundations and Doctors

Publication date: 3 Mar 2020

Default article

Diagnosed with a rare disease, fired from a job, graduating from law school and becoming a rare disease advocate, Candace Lerman tells her story in an inspirational podcast.

Publication date: 22 Jan 2020

Default article

Don’t Sell Yourself Short: Having a Career after a Rare Disease Diagnosis

Publication date: 22 Jan 2020


Default article

Diagnosis by Crowdsourcing?

Publication date: 10 Dec 2019

Screen shot 2020 05 22 at 2.54.32 pm

KCNMA1-Linked Channelopathy Featured in Diagnosis

Publication date: 10 Dec 2019

56dd36d7 a6d6 4372 a2a9 c337e454546f copy

December 2019 Newsletter

Publication date: 10 Dec 2019


Final 5db907b8b3f4390012888ac7 346730

How to Use the RareShare Network for Rare Disease Patients

Publication date: 30 Oct 2019