Cookies help us deliver our services. By using our services, you agree to our use of cookies. Learn more

Rareshare News Articles


Screen shot 2020 05 22 at 2.54.32 pm

KCNMA1-Linked Channelopathy Featured in Diagnosis

Publication date: 10 Dec 2019

56dd36d7 a6d6 4372 a2a9 c337e454546f copy

December 2019 Newsletter

Publication date: 10 Dec 2019

Newsletter

Final 5db907b8b3f4390012888ac7 346730

How to Use the RareShare Network for Rare Disease Patients

Publication date: 30 Oct 2019

Rarewear logo v6

RareWear Survey Assesses Monitoring Needs

Publication date: 23 Oct 2019

Default article

How to Get Answers From Rare Disease Experts: The Rare Genomics Task Force (RGTF)

Publication date: 27 Aug 2019

Podcast

338fca8f d371 4444 966a 630055fc2591

August 2019 Newsletter

Publication date: 25 Aug 2019

Newsletter

Default article

Obtaining a Rare Diagnosis

Publication date: 24 Aug 2019

Logo footer

Serving the Undiagnosed

Publication date: 24 Aug 2019

Default article

DC Area Meet-up for Young Adults Impacted by Rare or Chronic Conditions

Publication date: 21 Aug 2019

Default article

Rareshare Introduction

Publication date: 21 Aug 2019

Default article

Netflix rare disease documentary Diagnosis airs August 16th

Publication date: 14 Aug 2019

Default article

3 Perspectives on Facing a Rare Disease: A Patient, a Caregiver, and an Expert Discuss Diagnosis and Treatment of Pulmonary Fibrosis

Publication date: 8 Jun 2019

Community: Idiopathic Pulmonary Fibrosis

Podcast

Rideataxia logo 300x110

Friedreich's Ataxia Research Alliance Sponsors Cycling Events

Publication date: 28 Apr 2019

Community: Friedreich's Ataxia

C1021280 ec19 40b4 982b fe7d14553e3f

April 2019 Newsletter

Publication date: 22 Apr 2019

Newsletter

Default article

RGDI Promotes Drug Discovery

Publication date: 21 Apr 2019

Default article

Stop Making Sense: Antisense Therapies for Rare Diseases Show Promise

Publication date: 21 Apr 2019

Default article

Rare Genomics at World Orphan Disease Congress

Publication date: 19 Apr 2019

Default article

Rare Genomics at World Orphan Disease Congress

Publication date: 19 Apr 2019

Default article

All About Genomic Sequencing for Rare Disease Patients: A Focus on iHope

Publication date: 19 Apr 2019

Podcast

Aa8db82e 7e4c 449e a62e a93689d6e9ea copy

December 2018 Newsletter

Publication date: 19 Dec 2018

Newsletter