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Rareshare News Articles


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RareWear Survey Assesses Monitoring Needs

Publication date: 23 Oct 2019

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How to Get Answers From Rare Disease Experts: The Rare Genomics Task Force (RGTF)

Publication date: 27 Aug 2019

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August 2019 Newsletter

Publication date: 25 Aug 2019

Newsletter

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Obtaining a Rare Diagnosis

Publication date: 24 Aug 2019

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Serving the Undiagnosed

Publication date: 24 Aug 2019

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DC Area Meet-up for Young Adults Impacted by Rare or Chronic Conditions

Publication date: 21 Aug 2019

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Rareshare Introduction

Publication date: 21 Aug 2019

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Netflix rare disease documentary Diagnosis airs August 16th

Publication date: 14 Aug 2019

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Pulmonary Fibrosis Podcast on RareShare

Publication date: 12 Jun 2019

Community: Idiopathic Pulmonary Fibrosis

Podcast

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3 Perspectives on Facing a Rare Disease: A Patient, a Caregiver, and an Expert Discuss Diagnosis and Treatment of Pulmonary Fibrosis

Publication date: 8 Jun 2019

Community: Idiopathic Pulmonary Fibrosis

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Friedreich's Ataxia Research Alliance Sponsors Cycling Events

Publication date: 28 Apr 2019

Community: Friedreich's Ataxia

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April 2019 Newsletter

Publication date: 22 Apr 2019

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RGDI Promotes Drug Discovery

Publication date: 21 Apr 2019

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Stop Making Sense: Antisense Therapies for Rare Diseases Show Promise

Publication date: 21 Apr 2019

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iHope Podcast on RareShare

Publication date: 20 Apr 2019

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Rare Genomics at World Orphan Disease Congress

Publication date: 19 Apr 2019

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Rare Genomics at World Orphan Disease Congress

Publication date: 19 Apr 2019

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All About Genomic Sequencing for Rare Disease Patients: A Focus on iHope

Publication date: 19 Apr 2019

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December 2018 Newsletter

Publication date: 19 Dec 2018

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Growing up With a Rare Disease: An Alagille Syndrome Warrior on Understanding Her Rare Disease and Participating in Research

Publication date: 17 Dec 2018

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