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Rareshare News Articles


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RareShare Reaches Out

Publication date: 13 Dec 2017

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Rare Genomics Institute Helps in Hailey-Hailey Disease Treatment Study

Publication date: 13 Dec 2017

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Antisynthetase Syndrome Ask the Experts Podcast Series, Session II - 11/20/2017

Publication date: 24 Nov 2017

Community: Antisynthetase Syndrome

Podcast

Content podcast

RGI/RareShare Ask the Experts Podcast Series-Antisynthetase Syndrome

Publication date: 22 Oct 2017

Community: Antisynthetase Syndrome

Podcast

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Rareshare Newsletter - July, 2017

Publication date: 21 Jul 2017

Newsletter

Vanbrocklin

RGTV: VanBrocklin family find answers with WGS provided by iHope Program

Publication date: 21 Jul 2017

Video Interview

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July 2017 Newsletter

Publication date: 11 Jul 2017

Newsletter

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Adrenomyeloneuropathy (AMN)/Adrenoleukodystrophy (ALD) Podcast Series, Session II (06/14/2017)

Publication date: 14 Jun 2017

Community: Adrenomyeloneuropathy

Podcast

Neurofibromatosis type 2

Neurofibromatosis type 2 (NF2)

Publication date: 9 Jun 2017

Community: Neurofibromatosis Type 2

E-Book

Content podcast

RGI/RareShare Ask the Experts Podcast Series-Adrenomyeloneuropathy Syndrome

Publication date: 2 Jun 2017

Community: Adrenomyeloneuropathy

Podcast

Robertstone

Robert Stone’s Story – Genomics Used for A Diagnosis After 14 Years

Publication date: 27 Mar 2017

Patient Story

Amn ebook

AMN/ALD: A Clinical and Research Perspective (Rare Genomics Institute & RareShare)

Publication date: 27 Feb 2017

Community: Adrenomyeloneuropathy

E-Book

Antisynthetase ebook

Antisynthetase Syndrome: A Clinical and Research Perspective (Rare Genomics Institute & RareShare)

Publication date: 27 Feb 2017

Community: Antisynthetase Syndrome

E-Book

Chromosome4qdeletion

Chromosome 4q Deletion Syndrome: A Clinical and Research Perspective (Rare Genomics Institute & RareShare)

Publication date: 27 Feb 2017

Community: Chromosome 4q Deletion Syndrome

E-Book

Crigler najjar syndrome ebook

Crigler-Najjar Syndrome: A Clinical and Research Perspective (Rare Genomics Institute & RareShare)

Publication date: 27 Feb 2017

Community: Crigler-Najjar Syndrome

E-Book

Lgll ebook

LGLL Diagnoses, Therapies and Hope (Rare Genomics Institute & RareShare)

Publication date: 27 Feb 2017

Community: Large Granular Lymphocytic Leukemia

E-Book

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Rareshare 2.0 Launched

Publication date: 25 Feb 2017

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February 2017 Newsletter

Publication date: 17 Feb 2017

Newsletter

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LGLL Ask The Experts Podcast Session IV

Publication date: 18 Nov 2016

Community: Large Granular Lymphocytic Leukemia

Podcast

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Hospitals, Doctors, Medical Teams: Navigating Barriers of Rare Diseases (Patient Navigation)

Publication date: 12 Sep 2016

Community: Systemic Capillary Leak Syndrome

Podcast