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Rareshare News Articles


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A Huntington’s Disease Patient

Publication date: 16 May 2018

Community: Huntington's Disease

Podcast

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Receiving a Rare Disease Diagnosis: A Huntington’s Disease Patient Shares His Experience and Advice for Coping with a New Diagnosis (Patient Navigation)

Publication date: 14 May 2018

Community: Huntington's Disease

Podcast

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April 2018 Newsletter

Publication date: 25 Apr 2018

Newsletter

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Gene Therapy Approvals Bring Hope to Rare Disorder Communities

Publication date: 16 Apr 2018

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The Power of Community: How Patient Communities Provide Hope and Help Further Rare Disease Research (Patient Navigation)

Publication date: 6 Mar 2018

Podcast

Heritable disease research

Contribute to the Future of Heritable Disease Research

Publication date: 26 Jan 2018

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Race for 7 - The Race Against Rare Diseases Gathers Momentum

Publication date: 18 Jan 2018

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December 2017 Newsletter

Publication date: 17 Dec 2017

Newsletter

Disorder film festival

DISORDER: Rare Disease Film Festival

Publication date: 13 Dec 2017

Video Interview

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iHope continues for Rare Genomics Families

Publication date: 13 Dec 2017

Video Interview

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RareShare Reaches Out

Publication date: 13 Dec 2017

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Rare Genomics Institute Helps in Hailey-Hailey Disease Treatment Study

Publication date: 13 Dec 2017

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Antisynthetase Syndrome Ask the Experts Podcast Series, Session II - 11/20/2017

Publication date: 24 Nov 2017

Community: Antisynthetase Syndrome

Podcast

Content podcast

RGI/RareShare Ask the Experts Podcast Series-Antisynthetase Syndrome

Publication date: 22 Oct 2017

Community: Antisynthetase Syndrome

Podcast

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Rareshare Newsletter - July, 2017

Publication date: 21 Jul 2017

Newsletter

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RGTV: VanBrocklin family find answers with WGS provided by iHope Program

Publication date: 21 Jul 2017

Video Interview

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July 2017 Newsletter

Publication date: 11 Jul 2017

Newsletter

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Adrenomyeloneuropathy (AMN)/Adrenoleukodystrophy (ALD) Podcast Series, Session II (06/14/2017)

Publication date: 14 Jun 2017

Community: Adrenomyeloneuropathy

Podcast

Neurofibromatosis type 2

Neurofibromatosis type 2 (NF2)

Publication date: 9 Jun 2017

Community: Neurofibromatosis Type 2

E-Book

Content podcast

RGI/RareShare Ask the Experts Podcast Series-Adrenomyeloneuropathy Syndrome

Publication date: 2 Jun 2017

Community: Adrenomyeloneuropathy

Podcast