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Rareshare News Articles


Robertstone

Robert Stone’s Story – Genomics Used for A Diagnosis After 14 Years

Publication date: 27 Mar 2017

Patient Story

Amn ebook

AMN/ALD: A Clinical and Research Perspective (Rare Genomics Institute & RareShare)

Publication date: 27 Feb 2017

Community: Adrenomyeloneuropathy

E-Book

Antisynthetase ebook

Antisynthetase Syndrome: A Clinical and Research Perspective (Rare Genomics Institute & RareShare)

Publication date: 27 Feb 2017

Community: Antisynthetase Syndrome

E-Book

Chromosome4qdeletion

Chromosome 4q Deletion Syndrome: A Clinical and Research Perspective (Rare Genomics Institute & RareShare)

Publication date: 27 Feb 2017

Community: Chromosome 4q Deletion Syndrome

E-Book

Crigler najjar syndrome ebook

Crigler-Najjar Syndrome: A Clinical and Research Perspective (Rare Genomics Institute & RareShare)

Publication date: 27 Feb 2017

Community: Crigler-Najjar Syndrome

E-Book

Lgll ebook

LGLL Diagnoses, Therapies and Hope (Rare Genomics Institute & RareShare)

Publication date: 27 Feb 2017

Community: Large Granular Lymphocytic Leukemia

E-Book

Banner

Rareshare 2.0 Launched

Publication date: 25 Feb 2017

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February 2017 Newsletter

Publication date: 17 Feb 2017

Newsletter

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LGLL Ask The Experts Podcast Session IV

Publication date: 18 Nov 2016

Community: Large Granular Lymphocytic Leukemia

Podcast

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Hospitals, Doctors, Medical Teams: Navigating Barriers of Rare Diseases (Patient Navigation)

Publication date: 12 Sep 2016

Community: Systemic Capillary Leak Syndrome

Podcast

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Crigler Najjar Syndrome Ask The Experts Podcast Series (05/25/2016)

Publication date: 25 May 2016

Community: Crigler-Najjar Syndrome

Podcast

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LGLL Podcast Series III (3/25/2016)

Publication date: 25 Mar 2016

Community: Large Granular Lymphocytic Leukemia

Podcast

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LGLL Podcast Session II (11/24/2015)

Publication date: 11 Nov 2015

Community: Large Granular Lymphocytic Leukemia

Podcast

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Chromosome 4q Deletion Syndrome Podcast Series: (08/10/2015)

Publication date: 10 Aug 2015

Community: Chromosome 4q Deletion Syndrome

Podcast

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Adrenomyeloneuropathy (AMN)/Adrenoleukodystrophy (ALD) Podcast Series-06/02/2015

Publication date: 2 Jun 2015

Community: Adrenomyeloneuropathy

Podcast

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Antisynthetase Syndrome Podcast Series-02/24/2015

Publication date: 24 Feb 2015

Community: Antisynthetase Syndrome

Podcast

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LGLL Podcast Series-02/13/15

Publication date: 13 Feb 2015

Community: Large Granular Lymphocytic Leukemia

Podcast

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Mice as Research Models in Rare Neuro-immunologic Diseases (Transverse Myelitis, Neuromyelitis Optica, Acute Disseminated Encephalomyelitis and Optic Neuritis)-8/13/2013

Publication date: 13 Aug 2013

Podcast

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C.elegans (Nematode worms) as a Research Model in Rare Diseases & Trigeminal Neuralgia (TN) Podcast Series-12/12/2012

Publication date: 12 Dec 2012

Podcast

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Ataxia Podcast Series-II (Bonus Segment)-10/11/2012

Publication date: 11 Oct 2012

Community: Ataxia Telangiectasia

Podcast