RareShare has been contacted by a market research group offering a paid opportunity for Von Hippel-Lindau patients and caregivers in Germany, France or the UK to share their experiences through an online digital journal or a web-cam based interview.
If you, or someone you know, qualify and are interested in participating in the project, please click apply button below. Please indicate your country of origin, contact information and whether you are a patient or caregiver.
RareShare will forward this to the project sponsor for consideration. If selected for the project, the information you provide and compensation terms will be strictly between you and the sponsor. RareShare shall not hold or use this information, or be responsible for ensuring compensation.
Thank you for consideration and feel free to contact me if you have questions.
Raymond Chan, Ph.D.
Director, RareShare Team
Rare Genomics Institute