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Morgellons

What is Morgellons?

Morgellons is a condition characterized by a range of symptoms including crawling, biting, and stinging sensations on the skin; finding fibers on or under the skin; and persistent rashes or sores. This poorly understood condition remains a subject of considerable debate within the medical and scientific communities. Perspectives on Morgellons disease are often polarized, with some viewing it as a primary dermatological or infectious condition, while others consider it a manifestation of a psychiatric disorder, predominantly delusional parasitosis. 

 

Morgellons is a condition characterized by a range of symptoms including crawling, biting, and stinging sensations on the skin; finding fibers on or under the skin; and persistent rashes or sores. This poorly understood condition remains a subject of considerable debate within the medical and scientific communities. Perspectives on Morgellons disease are often polarized, with some viewing it as a primary dermatological or infectious condition, while others consider it a manifestation of a psychiatric disorder, predominantly delusional parasitosis. 

Acknowledgement of Morgellons has not been added yet.

Due to challenges in diagnosing and defining the condition, the prevalence rate of Morgellons is uncertain. A study conducted by the Centers for Disease Control and Prevention (CDC) estimated a prevalence rate for an "unexplained dermopathy" of 3.65 cases per 100,000 individuals, a median age of 52 years, and a higher prevalence in females (77%).

Synonyms for Morgellons has not been added yet.

Presently, the exact cause of Morgellons Disease (MD) remains a mystery. One view holds that delusional infestations lead to chronic picking and scratching of the skin resulting in the characteristic lesions. Another holds that there may be a true infectious cause such as with the spirochete bacterium Borrelia burgdorferi, the causative agent of Lyme disease.

 

The distinguishing characteristic of Morgellons Disease (MD) is the presence of microscopic subcutaneous fibers sometimes referred to as filaments within the skin. Lighted microscopy (60 X minimum) enables the visualization of these unusual fibers, often-colored red, blue, white or clear, embedded in open skin lesions as well as their presence beneath intact skin.

Other symptoms may include:

  • Intense itching, crawling sensations under the skin, leading to repeated scratching, picking or digging at the skin, sometimes hair pulling
  • Spontaneously–appearing, slow-healing lesions, seed-like objects/ granules and black specks on/in skin, “fuzz balls” on/in intact skin, fine, thread like fibers beneath and/or extruding from the skin
  • Fatigue, neurological impairment, brain fog and diminished higher cognitive abilities
  • Gastrointestinal changes, muscle aches, joint pain, sleep disturbances
  • Panic or anxiety

 

Name Description
Skin rashes Skin rashes and lesions that do not heal.
Joint and muscle pain Joint and muscle pain
Fatigue Fatigue

The diagnostic process for Morgellons disease is complex and requires a careful and systematic approach to consider both medical and psychiatric perspectives. The lack of specific diagnostic markers necessitates a thorough evaluation to exclude other known conditions that might explain the patient's symptoms.

The differential diagnosis for individuals presenting with symptoms suggestive of Morgellons disease is broad and includes several conditions that need to be carefully ruled out. True cutaneous infestations, such as scabies and lice, should be excluded through appropriate examination and testing. Other dermatological conditions that can cause pruritus or chronic itching also need to be considered. Visualization of fibers in skin by microscopy may be performed. Blood tests may be ordered to rule out underlying bacterial infections, including those caused by Borrelia burgdorferi

From a psychiatric perspective, illness anxiety disorder and primary psychiatric disorders such as schizophrenia, dementia, and major depressive disorder should be part of the differential diagnosis.

Diagnostic tests of Morgellons has not been added yet

There are no established guidelines for treatment, although a multidisciplinary approach involving coordination between dermatology, psychiatry and primary care needs may be most helpful:

  • Dermatologic care: Topical treatments, such as corticosteroids and emollients, may be used to provide symptomatic relief from itching; wound care and management of secondary skin infections.

  • Antipsychotic medications: To address delusional thinking if applicable (e.g., pimozide, risperidone).

  • Cognitive behavioral therapy (CBT): To help manage obsessive behaviors and distress.

 

Morgellons does not appear to be life-threatening and patients are expected to have a typical lifespan, although they may be at a higher risk of developing skin infections due to frequent picking and scratching. In cases where there is an identifiable infectious etiology, treatment of the underlying infection should bring about resolution. Antipsychotic medications may improve the prognosis and quality of life for some patients.

Tips or Suggestions of Morgellons has not been added yet.
  1. Middelveen MJ, Fesler MC, Stricker RB. (2018). "History of Morgellons disease: from delusion to definition." Clin Cosmet Investig Dermatol. 11:71-90. doi: 10.2147/CCID.S152343. PMID: 29467580; PMCID: PMC5811176.
  2. Dermatology online journal:  https://escholarship.org/uc/item/2md8r5ms.
What do YOU believe to be TRUE about Morgellons? Created by kammy
Last updated 2 Nov 2025, 02:11 AM

Posted by AKU UKA
2 Nov 2025, 02:11 AM

https://drive.google.com/drive/folders/1Zs7fr6-f0ZCZlGr6ZpfHwhvg2bdj98Ue

This is epic parasitic research modules and it contains every bit of info, pictures, video over the last 4 years that's only been trying to get help for I've seen 25 veterinarians in a row, message every University in Canada, message every parasitologist in Canada visited several universities in person, is absolutely no one responding or helping.. I shouldn't learned that none of my emails had ever reached through their intended recipients casting more questions over the phenomenal please view the metaphysical addendum because it contains videos that depict scenes and scenarios that are just not possible by our understanding of the world everything else is data and Communications and or switch stations for help and obviously no not for money I mean for just for help please let me know what you think thank you for having me on your community absolutely promise to any and all that I would not dream of wasting your time with wishy washy speculation I have poured every ounce of effort, money and emotion into this research.. lastly I will say that I am not a medical student or medically or scientifically trained in any way conducting the genetic research was purely motivated by my love for my animal and being in a situation that needed action

Posted by AKU UKA
2 Nov 2025, 02:06 AM

I'm sorry please excuse any typos I'm writing with urgency and using a voice to text feature

Posted by AKU UKA
2 Nov 2025, 02:03 AM

Hello everyone I am new to the this site, my name is Joshuaketola I'm from Victoria British Columbia.... and I have some very important news concerning Morgellons disease... and before I tell you can you please just look at the information before you make a judgment because you could be missing something life changing.... I have successfully built a partial DNA profile of the Morgellons parasite...I HAVE SEQUENCED A GENETIC PROFILE OF THE MORGELLONS PARASITE....and most importantly- YES - MORGELLONS IS MORE THAN JUST ANOTHER BUG-

I have found the truth, the real truth about it and everything concerning- and if you allow me to.present it to you with immediately trying to disprove my work, youll find this information both compelling and although completely shocking....truth.....I learned genetics, bought a lab. And was able to sequence an egg...1 of about 10 I pulled from my arm- and despite all odds, was able to successfully sequence enough to get a bunch of good dna information...and of course as you can guess....A NO.MATCH AGAINST THE BOLD GLOBAL DATABASE...

My motivation is this, my dog has caught it from me and it's killing her and not just that if any of you have experienced the other worldly affects or symptoms that accompany Morgellons you can imagine what my dog's going through... I wrote a scientific publication Documenting everything From the last four years And I believe I'm the only person in the world with a DNA profile of this organism I'm going to give you the link Is anybody interested You listen to what I have to say Because the implications and the Things I've uncovered are absolutely Mind-Blowing And it is much worse and much deeper than I ever could have imagined.... all I've been met with over the last 4 years is Nathan's and closed the doors I hope that I don't meet the same response on this community cuz I'm desperately trying to help my dog and myself I have spent almost $200,000 on Research and there's no question that I have found the truth..... If someone were to just look at the information before Telling me it was wrong I'm sure that they would find My research Useful and compelling...THIS IS NO ORDINARY PARASITE- I HAVE UNCOVERED THE TRUTH AND I KNOW HOW TOCOMBAT THE ORGANISM- would anyone care to hear, or chat? I dont want to impose on anyone- the reason why there's no DNA profile of the organism is because the fibers are not the organism the fibers are a byproduct of the process the organism conducts while it dissolves muscle tissue that's why nobody's been able to get a DNA profile... that is my belief anyways....

Sincerely hoping to gain some momentum, and maybe some help before my dog dies, 

Heres the link, if you wish to view it please take the time to absorb some of it it's a tall drink of water to swallow but I promise you I have done my homework... if you can't view the link please contact me as my communication has been purposely severed digitally several times already..

Thank you i hope to hear from anyone 

with Sincereity and Urgency....

Joshua Ketola

Akuuka666@protonmail.com  ,

Surehealthsani@protonmail.com ,

Hatemachine.ca@gmail.com 

236 464 7119

778 638 1449

View Full Thread (6 more posts)
All these dates are old. Where are all the Morgellons sufferers now Created by Wendy Cooper
Last updated 7 Nov 2024, 07:49 PM

Posted by jmurphree
7 Nov 2024, 07:49 PM

Hey Everyone,

Try this page to find a doctor who might be able to help: Find A Morgellons Doctor - Morgellons Survey

Best of luck, and let me know if it works for you!

Posted by Llejan1553
27 Oct 2024, 11:50 PM

I had this disease 20+years ago, and it's October of 2024. Now I have it again!  Don't remember much about how it went away, but I definitely remember the symptoms. I've had it for about 2 months now, with no relief. Been dying a lot of research, and there's just to much mixed info on how to get rid of it. Getting stressed out on researching! I need help fast. 

I have lumps on my arm that I call nests, black specks, white fuzz balls in my clothing, bedding, couch,etc., fibers that protrude out from skin, nails, and body. I also, once in a while see blue, black,red fibers under my skin that move when I touch them. I have painful reactions when I put something on my skin that it doesn't like, and it sometimes resonates to other parts of my body, like it's communicating! 

HELP PLEASE 

Posted by Llejan1553
27 Oct 2024, 11:36 PM

I use baby oil, and it helps. My doctor gave me a prescription for a fungal infection, and it's helped a lot, but only gave me a 7 day supply. I'm calling him back to see if I can get a refill because I need to take it longer. I'm researching about this, I found that a person suffering from this, used this for almost a year. She also uses the baby oil. I'm looking for more help, and/ or other  suggestions out there, please? 

View Full Thread (4 more posts)
I don't know what to believe Created by Sean Martin
Last updated 7 Nov 2024, 07:29 PM

Posted by jmurphree
7 Nov 2024, 07:29 PM

Hey Sean, bacterial infection has the most evidence. Seeing a doctor who specializes in treating Lyme disease is how I got my life back. You might try this page on my website to find a doctor nearby, let me know if it helps! Find A Morgellons Doctor - Morgellons Survey

Posted by Sean Martin
30 Oct 2024, 05:15 PM

My name is Sean I am 50 years old. I'm assuming I've had the symptoms for 10+ years I've dealt with psoriasis my entire life kind of assumed a lot of it was related to that. Also I've had a lot of mental health problems emotional trauma.  Long story short it wasn't until I got sober that I realized something bad was wrong with me and of course then it exploded that's when the huge lesions appeared on my arms now my legs they don't go away a doctor and I saw literally told me I was picking them and to stop it and there was nothing wrong with me what the fuck am I supposed to do I read information that says it's everything from Nanobots to a bacterial infection

Posted by Sean Martin
30 Oct 2024, 05:15 PM

My name is Sean I am 50 years old. I'm assuming I've had the symptoms for 10+ years I've dealt with psoriasis my entire life kind of assumed a lot of it was related to that. Also I've had a lot of mental health problems emotional trauma.  Long story short it wasn't until I got sober that I realized something bad was wrong with me and of course then it exploded that's when the huge lesions appeared on my arms now my legs they don't go away a doctor and I saw literally told me I was picking them and to stop it and there was nothing wrong with me what the fuck am I supposed to do I read information that says it's everything from Nanobots to a bacterial infection

Seeking Morgellons Patients with MRI Scans Created by sunnyand7777
Last updated 8 Jan 2023, 09:44 PM

Posted by sirenaut
8 Jan 2023, 09:44 PM

I have morgellons, and I have MRI scans too.  If they are helpful.  

Posted by Topsail Island Gurl
28 Nov 2021, 07:03 PM

Sunnyand7777, I have had Morgellons since 2010 and I have scans showing lesions on my white matter.  Happy to help you! 

Topsailislandgurl@gmail.com

910.388.4835

Topsail Island, NC

 

Posted by Josephine
21 Dec 2013, 04:09 PM

I have had several mri scans following a diagnosis of "empty cella syndrome". The first mri showed seizure activity. Three scans have been done since then and they all have shown seizure activity. I had been placed on seizure medication following the first mri. I did seek another opinion from a Neurologist because I have never had a seizure. He agreed with me and took me off the meds. My mri's continue to come back showing seizure activity and I continue to remain seizure free. My M.D. cannot explain why the tests show one thing, and yet I don't have seizures. I have not mentioned Morgellons to any physician due to articles I've read from Morgellons sufferers. I do not doubt that I have Morgellons. I have all the symptoms.

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"Morgellons" A.K.A. Cutaneous Vasculitis Created by don
Last updated 27 Jul 2022, 12:49 PM

Posted by don
27 Jul 2022, 12:49 PM

The term "Morgellons" is a name that a lot of people use for an already established condition. The condition is called Cutaneous Vasculitis. This particular one is caused by a Bartonella infection.

https://rarediseases.org/rare-diseases/cutaneous-vasculitis/

"Cutaneous necrotizing vasculitis (CNV) is characterized by inflammation and tissue damage (necrosis) of blood vessel walls (lumen) and associated skin (cutaneous) lesions. "

Bartonella operates genetically and causes a lot of cellular mutations. The fibers are caused by a mutation of an existing cell fiber.

https://nbprotocol.proboards.com/thread/273/fiber-production-skin

"Fiber production in the skin"

It can be treated but not with antibiotics or antipsychotics

Looking for Doctors and Researchers!!! Created by Tigerfly22
Last updated 10 Jul 2022, 11:46 PM

Posted by Tigerfly22
10 Jul 2022, 11:46 PM

Hi! Thanks for reading. Hoping you or someone you know can help me and my kids! 

I’m desperate to connect with a physician or researcher who is interested in figuring this thing out. I live in Reno, NV. I am willing to travel, but would prefer someone on the US West Coast (ish) if possible. I am a non-drug user and mother of 2 small boys, who are also showing signs of Morgellons Disease: skin  shedding (my 2yo) and  skin-crawling/GI issues/1 recent skin lesion (my 5yo). I think I may have been born with this and have now passed it onto my kids. People have described me as the “most unhealthy, healthy person” they know. I’m very in tune with my body, spend an immense amount of time reading peer-reviewed/scholarly research articles and believe science is the foundation of everything! PLEASE HELP!! 

Picture.esque@gmail.com
(530)386-7885

people who are suffering NOT SELLING!!! Created by Jennlong74
Last updated 1 Feb 2022, 09:58 PM

Posted by Jennlong74
1 Feb 2022, 09:58 PM

I was hoping to find people like myself who have the issue and want to discuss it.. whether it's symptoms or treatments but I'm not looking to buy anything and I'm not looking to sell anything I just want to know what works for people what doesn't work for people what doctors have said if they've said anything if anyone is interested I have some at home remedies that have worked to alleviate the symptoms slightly you know nothing gets rid of it but there are things that I've done to make it more comfortable initially I had huge bald spots on my head that were so painful I seriously contemplated suicide. Thankfully those days are gone I've been able to get myself to a point that I don't wish for death everyday they're good days and bad days but if anyone who really wants to discuss this I would love to actually talk to someone else who suffers from it not someone trying to sell me a service go to this place and buy this product. And if you are a doctor that happens to know about this illness if you can give me some real genuine information about it before I have to you know buy your service or you know this particular one of a kind holistic product you know I'm not I don't have a problem with buying things I've spent thousands and thousands of dollars on different treatments but I'm just I'm done being swindled so if you are a doctor and you have some type of information you should probably try to provide it without me having to pay for it and other people who are suffering from it I'm sure you feel my pain cuz everything's like click this and I go here or go there but I genuinely want to know what people are doing about it if doctors have said anything what they've used for treatments and share some of the things I've done that we're just household items and things I've discovered and different studies that I've researched to try to find out what the hell this is that's happened to us by the way I don't know if it matters but I live in New Jersey so I know some people tend to suffer more in different areas of the country but I just thought I'd throw that out there

Morgellons (NCS) treatment and eradication Created by Dreamgetter
Last updated 22 Jun 2021, 04:42 PM

Posted by Dreamgetter
22 Jun 2021, 04:42 PM

Hello, my name is Scott and I work at the Parasitology Center Inc. in Scottsdale, AZ. Our doctor Dr. Omar Amin has been researching Morgellons (NCS) since 1994. I would recommend you visit our website to learn more about the cause of Morgellons (NCS) which is that it is a toxicity disease typically due to dental toxicity (80% of the time) with the other 20% being toxic environmental exposure or recreational drug use (meth, cocaine, heroin, etc.). Secondary infections are very common with Morgellons (NCS) such as springtails living in the hair, fungus on the skin (fibers), black specks (spongiform of the fungus), lesions, etc. Not everyone will suffer from the same symptoms but the most indicative symptoms of Morgellons (NCS) are skin-crawling and pinprick sensations. This is due to the nerve synapses being corrupted and misfiring due to the body being overloaded with toxins and not being able to flush the toxins out of the body. The most important step in ridding oneself of Morgellons (NCS)(Neuro-cutaneous Syndrome) is to determine the source of toxicity which can be done with a blood compatibility test. Once you have determined your source of toxicity and removed it from the body and detox your storage organs Morgellons (NCS) can be eliminated. More information can be found here www.parasitetesting.com 

Undiagnosed Created by keepnfaith81
Last updated 17 Dec 2020, 12:33 AM

Posted by Bruce Wayne
17 Dec 2020, 12:33 AM

I have just recently found out about this disease.  I have been to the Drs an A&E 28 times in total. I believed I had a cotton nematode parasite inside me!! It's now been a year and a half and it's running me into the ground most days I get so depressed I feel like committing suicide. Thank god I have my kids who despite not living with me are the reason I dont take such drastic action. How do you all manage to cope? I'm not going to be able to convince my Dr I have this despite having all the symptoms and more. I have been diagnosed with delusional parasitosis 

Posted by judytoo
16 Jan 2014, 02:19 PM

keepnfaith, you will find that there isn't a Dr. anywhere that believes in it. Well, maybe a few. I went to so many Drs. and then I got scared cause I thought my County might lock me up. So I quit going. I was tired of being made a fool out of also; always being told I was delusional. Ha! I suffer from M and I will email you. That is really tough when you don't have the support you so desperately need. No one can say if it is contagious or not. I worry about my grandson cause he is only 5 months old but their parents aren't worried at all. makes me wonder if they really believe I have this. I will email you....Judy

Posted by keepnfaith81
16 Jan 2014, 02:59 AM

No doctor in Bakersfield Ca believes in this disease, I have a the symptoms and recently found out about it myself, after a year of living in hotels I've ran out of money I've moved in with some relatives, they believe it's delusional so aren't concerned about getting it. Can somebody please tell me if this M is contagious please, I'm having a hard enough time dealing with this and I'm terrified what can possibly happen if the two babies in the house were to get this, I don't know if I can handle knowing that I was the cause of it. Any info is more than appreciated. I would love to talk to someone or anyone that suffers from M. My personal email is milkxpress@outlook.com. Thank you for your time and god bless you all.

How to Raise Public Awareness? Created by kammy
Last updated 14 Oct 2014, 01:53 AM

Posted by smoothdeb
14 Oct 2014, 01:53 AM

the Charles E. Holman Foundation has a pamphlet that you can download on your computer, and give tons to the local clinics, doctors, health nursing fields, home health, public health, and anywhere else you can think of. Try to be polite and just ask if you may leave them with them. or put them in a rack with other literature. AS far as I am concerned, Mayo Clinic and the CDC are not reputable and I never quote what they say. smoothdeb

Posted by kammy
26 Nov 2008, 06:24 PM

There are so many hypothesis out there about what Morgellons is, they are not theories, because a theory is a tested hypothesis. In fact, from what I can tell - so far, as of today 11/21/08 - very little factual information is available to help us figure out what this is, what is causing it, how to manage and maintain it, and most of all how to cure it. The Medical Professionals have not taken our condition seriously and when we sought them out, we were called delusional. We have been forced to go into hiding, some of us quarantining ourselves from our friends and families - not even knowing if Morgellons is contagious. We are having to experiment with over-the-counter solutions, and household items that seemingly do not work to rid us of the pathogens, all we have at this time is the Internet to learn from each what we have found to help manage this terrible disease. People's lives have been and continue to be destroyed by this illness and yet, as of today - we are still getting very little support. We have to raise public awareness, to possibly get enough people involved that can get us some quick research done to inform our Health Care Professionals on what to look for and how to threat us. Supposedly, in a statement from Dr. Hildergard, 1,000 people a day, worldwide are showing signs of having this new epidemic disease. This is very alarming! The CDC is a military run organization, part of our Government that for whatever reason, has been totally ignorning Morgellons since 2002. They are currently in the process of a $300,000 study of 500 people in Oakland, CA - that's $5000 allocated for each person? And, we have to wait until next year to get any of these results. We are in a lot of trouble and we need help and we need to figure out how to get it. At this time, it doesn't appear that our Government Health Organizations are too much interested, in what has happened to us? What can we do? How can I or you, help wake up the people that have the most potential to help us? The clock is ticking and every day counts.

Community External News Link
Title Date Link
What is Morgellons disease, the mysterious condition Joni Mitchell claims she has? 02/04/2024
Community Resources
Title Description Date Link
The New Morgellons Movement

We support the development of tools for physicians to recognize and remediate the Morgellons Disease condition by raising funds for scientific research so that patients can get the care they desperately need.

11/07/2024
The Charles E. Holman Foundation

 

The Charles E. Holman Foundation is a grassroots organization that supports research, education, diagnosis and treatment of Morgellons Disease.

 

Ultimately, we seek discovery of it's cause and cure.

 

 

The Charles E. Holman Foundation exists to play an integral role in funding scientific research and spreading the understanding of Morgellons Disease to others.

 

 

The Charles E Holman Foundation is a 501(C) 3 Non-profit organization.

 

 

Our Mission: To create awareness and find factual knowledge about Morgellons Disease through:

 

 

>Funding and sponsorship of empirical scientific research

 

>Educating the medical community and the public

 

>Creating a patient support system

 

>Bringing accurate information to local, state and federal health agencies to enhance recognition for appropriate government action within their designated responsibilities and duties under the law.

 

 

Our Vision: We seek discovery of the cause and a cure for Morgellons Disease.

03/20/2017

Clinical Trials


Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

Community Leaders

jmurphree

I've written numerous articles about Morgellons, host a podcast about Morgellons, interviewed several experts who are considered authorities on the topic of Morgellons for my YouTube channel, created a free online course that covers the basics of Morgellons, founded a non-profit that's dedicated to Morgellons education, and volunteer to speak with our (United States) Federal lawmakers about more funding for Lyme disease every year. That's why people regard me as an authority on the topic of Morgellons disease.

 

Expert Questions

Ask a question


25 Dec 2024, 12:14 PM

From everything that I am reading I see absolutely no help for any of us. Where does one turn with all hope gone that at least one doctor would not treat me like a meth head. I would rather die than go back and be humiliated by those people again. On the other hand I would do anything I can to help solve this illness before it kills us. I need some hope.

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Community User List

Morgellons Disease

I've written numerous articles about Morgellons, host a podcast about Morgellons, interviewed several experts who are considered authorities on the topic of Morgellons for my YouTube channel,...

I'm a retired 71 year old suffering from Morgellons disease. Had it some 20+ years ago, and don't remember how it was treated. I just remember the symptoms, and that I was sent to multiple...

Morgellons.   
 

psychotherapist and repeat startup founder. Wicked smart, deeply human.  Lost my partner and love Derek and 20 year old daughter Aleutia in Nov 2022, 20 days...

don

I'm a 44 yr old disabled female Marine Veteran. I'm a writer. I'm a Morgellon's Disease victim. For now that's all I am as this disease is consumed every minute of every day...

 

After lots of symproms and misdiagnoses I was diagnosed with Lyme and Bartonella via PCR testing last April (when Covid was exploding and things were shutting down fast)--but...

Oni
Oni
Hi y'all! I'm glad I found this site...I'm tired of not being able to talk about this with anyone who understands how awful this is. I'm new to this, roughly 2 months in of knowing what it is. I've...
My life took an abrupt downturn on the day I broke out with this wretched affliction we call Morgellons. That was 8 years ago in 2008 I knew I was sick, so I took my laptop computer to bed and...
I am the parent of a son that is having these issues. I'm looking for others who might have more information.
HI, my friends call me Nicky. I have not had any Morgellons symptoms for over a year now. I had a terrifying journey for 14 months, experiencing around 95 per cent of the afflictions Morgellons...
I became disabled from working as a Registered Nurse in 2005. In a few years, I developed over 9 diagnosis of various forms, and then Morgellon symptoms began. Through Rense.com and just web...
54 year old female with recurring & chronic lyme disease
I'm a 32 year old from Bakersfield California. I was born and raised in Tulare ca until 2004 I moved to Las Vegas Nevada. Mid 2011 I moved back to Tulare California... Early 2012 I moved from...
Have Morgellons Disease. I am a strong Christian and were it not for my faith in Jesus Christ, I could nt survive living daily with this disease.

 

 

I love to communicate with others, be...
I am a 72 year old female who began having unfamiliar and strange sensations on my scalp, back, mouth, and finally my entire body at one time or another. Each time I researched symptoms Morgellons...
I am suffering from morgellons in many ways.
I am a physician working with Sunny Simmons and others on understanding Morgellons disease better.
I suffer from a rare disorder called Morgellons and live in Western WA
I first learned that I had Morgellons about 14 months ago, after years of progressing debilitation. It wasn't until about 2 years ago that I had blatant symptoms that were really bizarre, but...
Gwen lives in Lakeland, Tn, a community just outside of Memphis. Graduating from Memphis State University (now The University of Memphis) in 1977, she worked at Baptist Memorial Hospital as Charge...
My name is David Isserman and I am one of the co-founders of RareShare. If you have any questions or feedback regarding RareShare, please feel free to contact me directly at david@rareshare.org.

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Discussion Forum

What do YOU believe to be TRUE about Morgellons?

Created by kammy | Last updated 2 Nov 2025, 02:11 AM

I don't know what to believe

Created by Sean Martin | Last updated 7 Nov 2024, 07:29 PM

Seeking Morgellons Patients with MRI Scans

Created by sunnyand7777 | Last updated 8 Jan 2023, 09:44 PM

"Morgellons" A.K.A. Cutaneous Vasculitis

Created by don | Last updated 27 Jul 2022, 12:49 PM

Looking for Doctors and Researchers!!!

Created by Tigerfly22 | Last updated 10 Jul 2022, 11:46 PM

people who are suffering NOT SELLING!!!

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Communities

Our Communities

Join Rareshare to meet other people that have been touched by rare diseases. Learn, engage, and grow with our communities.

FIND YOUR COMMUNITY
Physicians

Our Resources

Our rare disease resources include e-books and podcasts

VIEW OUR EBOOKS

LISTEN TO OUR PODCASTS

VIEW OUR GUIDES

Leaders

Our Community Leaders

Community leaders are active users that have been touched by the rare disease that they are a part of. Not only are they there to help facilitate conversations and provide new information that is relevant for the group, but they are there for you and to let you know you have a support system on Rareshare.