I was hoping to find people like myself who have the issue and want to discuss it.. whether it's symptoms or treatments but I'm not looking to buy anything and I'm not looking to sell anything I just want to know what works for people what doesn't work for people what doctors have said if they've said anything if anyone is interested I have some at home remedies that have worked to alleviate the symptoms slightly you know nothing gets rid of it but there are things that I've done to make it more comfortable initially I had huge bald spots on my head that were so painful I seriously contemplated suicide. Thankfully those days are gone I've been able to get myself to a point that I don't wish for death everyday they're good days and bad days but if anyone who really wants to discuss this I would love to actually talk to someone else who suffers from it not someone trying to sell me a service go to this place and buy this product. And if you are a doctor that happens to know about this illness if you can give me some real genuine information about it before I have to you know buy your service or you know this particular one of a kind holistic product you know I'm not I don't have a problem with buying things I've spent thousands and thousands of dollars on different treatments but I'm just I'm done being swindled so if you are a doctor and you have some type of information you should probably try to provide it without me having to pay for it and other people who are suffering from it I'm sure you feel my pain cuz everything's like click this and I go here or go there but I genuinely want to know what people are doing about it if doctors have said anything what they've used for treatments and share some of the things I've done that we're just household items and things I've discovered and different studies that I've researched to try to find out what the hell this is that's happened to us by the way I don't know if it matters but I live in New Jersey so I know some people tend to suffer more in different areas of the country but I just thought I'd throw that out there