Morgellons is a condition characterized by a range of symptoms including crawling, biting, and stinging sensations on the skin; finding fibers on or under the skin; and persistent rashes or sores.
|Skin rashes||Skin rashes and lesions that do not heal.|
|Joint and muscle pain||Joint and muscle pain|
I was hoping to find people like myself who have the issue and want to discuss it.. whether it's symptoms or treatments but I'm not looking to buy anything and I'm not looking to sell anything I just want to know what works for people what doesn't work for people what doctors have said if they've said anything if anyone is interested I have some at home remedies that have worked to alleviate the symptoms slightly you know nothing gets rid of it but there are things that I've done to make it more comfortable initially I had huge bald spots on my head that were so painful I seriously contemplated suicide. Thankfully those days are gone I've been able to get myself to a point that I don't wish for death everyday they're good days and bad days but if anyone who really wants to discuss this I would love to actually talk to someone else who suffers from it not someone trying to sell me a service go to this place and buy this product. And if you are a doctor that happens to know about this illness if you can give me some real genuine information about it before I have to you know buy your service or you know this particular one of a kind holistic product you know I'm not I don't have a problem with buying things I've spent thousands and thousands of dollars on different treatments but I'm just I'm done being swindled so if you are a doctor and you have some type of information you should probably try to provide it without me having to pay for it and other people who are suffering from it I'm sure you feel my pain cuz everything's like click this and I go here or go there but I genuinely want to know what people are doing about it if doctors have said anything what they've used for treatments and share some of the things I've done that we're just household items and things I've discovered and different studies that I've researched to try to find out what the hell this is that's happened to us by the way I don't know if it matters but I live in New Jersey so I know some people tend to suffer more in different areas of the country but I just thought I'd throw that out there
Anyone still around to talk about this horrible affliction that's not looking to sell products or service... Unfortunately all my research has been done from home by myself because no doctor or medical professional recognize anything. Honestly after three years I've come across some pretty stunning treatments or info about it I'm just wondering if anyone wants to really discuss it I'm in New Jersey...
* I use homemade soaps that contain one or more of the following: oatmeal, clay, tea tree oil, sulfur, coconut, mainly. I use it all over, inside my ears where the fungal mites bite and crawl out of, as well as my nose and corners of my mouth. It keeps them at bay so I don't itch and scratch in public. For itching, I take hydroxyzine or atarax 100 mg prn from my doctor. I give it to whomever needs it, as he supplies it by the hundreds in my prescription. Keeping your hands clean and OFF YOUR BODY, is what works for me. If you can't afford handmade soaps, use original selenium Head and Shoulders for a few bucks a bottle. It burns the crotch, but I believe it works there, too. I suffer from fungus, that is my main complaint. I have it in my teeth, nose, eyes, ears, throat, ears canals, mouth, and lungs. 6 of my toenails have been permanently removed from fungus, and my nails are full of black and white fungus all the time. Under a black light at the doctor, the short fibers stick out ALL OVER MY BODY. DEVB IN SOUTH DAKOTA
I've tried http://www.naturalginesis.com/parasites The first day I tried it I went thru 36 ounces of it and that's far to much but being horrified of what was going on with me I didn't think it couldn't possibly get any worse.... Wrong , I ended up freaking out because the stinging/bitting, the crawling sensation, the little white things that come out of your pours, the burning sensation in different parts of my body, and a weird dust ash type of substance on my clothes over the spots that got hot was by far my worst day of the symptoms. The next two following days had little to no "action" after 3 weeks of little to none symptoms it's started to Gear back up to how it was before I used the http://www.naturalginesis.com/parasites
Omg!! I'm in the same boat... Symptoms became severe right before the pandemic hit and haven't been able to receive any kind of assistance from any medical professionals. I'm looking for any kind of information to treat this I've only come across vague medical studies or conspiracy type information... Honestly with what I've been experiencing and personal testing/research... I'm leaving towards the conspiracy type websites... I still look for scientific medical resources but they are so so limited with most still treating it as a possible psychological condition which we KNOW IS BULLSH@#!! I don't know what your symptoms are but I've had some really really secede issues which I think may have been a result from a co-infection I guess you'd say something disgusting tripped on me at work and I think it kicked this stuff into overdrive in any event just for curiosity sake there's something that's not medical or even logical but for some reason I've gotten relief from it perhaps you might too I'm almost curious to see if you try it if it would work. These fibers that are on at least my body are so difficult to get rid of sometimes a bunch of sometimes it's gotten so bad where it feels like it's almost choking me long story short I accidentally found something that relieved it at least in certain areas and I know this sounds crazy but maybe try it fabric softener. I started noticing when I was using extra fabric softener in my laundry in the lint screen there would be hundreds of little white balls in the with the normal lint. So for curiosity sake I ripped dryer sheet on a problem area and the tightness went away in that area for a short time and whenever I touch like say I'll like a severe lump area with dryer sheet it will relieve some of the tension. I know it sounds crazy but everything about this is crazy in general and there's definitely some kind of fibers that are on us so maybe the fabric softener softens up the fibers I don't know but I figured I'd just throw that out there and see maybe if it could be helpful or if you guys have any helpful information back.
After lots of symproms and misdiagnoses I was diagnosed with Lyme and Bartonella via PCR testing last April (when Covid was exploding and things were shutting down fast)--but Morgellons was what pushed me physically and psychologically to the brink--and continues to plague me after a full year of aggressive treatment (antibiotics , herbs, etc). If you can give me an idea of your experience maybe we can help each other.
I need some help getting rid of Morgellons!!
Sunnyand7777, I have had Morgellons since 2010 and I have scans showing lesions on my white matter. Happy to help you!
Topsail Island, NC
I have had several mri scans following a diagnosis of "empty cella syndrome". The first mri showed seizure activity. Three scans have been done since then and they all have shown seizure activity. I had been placed on seizure medication following the first mri. I did seek another opinion from a Neurologist because I have never had a seizure. He agreed with me and took me off the meds. My mri's continue to come back showing seizure activity and I continue to remain seizure free. My M.D. cannot explain why the tests show one thing, and yet I don't have seizures. I have not mentioned Morgellons to any physician due to articles I've read from Morgellons sufferers. I do not doubt that I have Morgellons. I have all the symptoms.
I have had a recent Brain Scam
Hello, my name is Scott and I work at the Parasitology Center Inc. in Scottsdale, AZ. Our doctor Dr. Omar Amin has been researching Morgellons (NCS) since 1994. I would recommend you visit our website to learn more about the cause of Morgellons (NCS) which is that it is a toxicity disease typically due to dental toxicity (80% of the time) with the other 20% being toxic environmental exposure or recreational drug use (meth, cocaine, heroin, etc.). Secondary infections are very common with Morgellons (NCS) such as springtails living in the hair, fungus on the skin (fibers), black specks (spongiform of the fungus), lesions, etc. Not everyone will suffer from the same symptoms but the most indicative symptoms of Morgellons (NCS) are skin-crawling and pinprick sensations. This is due to the nerve synapses being corrupted and misfiring due to the body being overloaded with toxins and not being able to flush the toxins out of the body. The most important step in ridding oneself of Morgellons (NCS)(Neuro-cutaneous Syndrome) is to determine the source of toxicity which can be done with a blood compatibility test. Once you have determined your source of toxicity and removed it from the body and detox your storage organs Morgellons (NCS) can be eliminated. More information can be found here www.parasitetesting.com
I have just recently found out about this disease. I have been to the Drs an A&E 28 times in total. I believed I had a cotton nematode parasite inside me!! It's now been a year and a half and it's running me into the ground most days I get so depressed I feel like committing suicide. Thank god I have my kids who despite not living with me are the reason I dont take such drastic action. How do you all manage to cope? I'm not going to be able to convince my Dr I have this despite having all the symptoms and more. I have been diagnosed with delusional parasitosis
keepnfaith, you will find that there isn't a Dr. anywhere that believes in it. Well, maybe a few. I went to so many Drs. and then I got scared cause I thought my County might lock me up. So I quit going. I was tired of being made a fool out of also; always being told I was delusional. Ha! I suffer from M and I will email you. That is really tough when you don't have the support you so desperately need. No one can say if it is contagious or not. I worry about my grandson cause he is only 5 months old but their parents aren't worried at all. makes me wonder if they really believe I have this. I will email you....Judy
No doctor in Bakersfield Ca believes in this disease, I have a the symptoms and recently found out about it myself, after a year of living in hotels I've ran out of money I've moved in with some relatives, they believe it's delusional so aren't concerned about getting it. Can somebody please tell me if this M is contagious please, I'm having a hard enough time dealing with this and I'm terrified what can possibly happen if the two babies in the house were to get this, I don't know if I can handle knowing that I was the cause of it. Any info is more than appreciated. I would love to talk to someone or anyone that suffers from M. My personal email is firstname.lastname@example.org. Thank you for your time and god bless you all.
the Charles E. Holman Foundation has a pamphlet that you can download on your computer, and give tons to the local clinics, doctors, health nursing fields, home health, public health, and anywhere else you can think of. Try to be polite and just ask if you may leave them with them. or put them in a rack with other literature. AS far as I am concerned, Mayo Clinic and the CDC are not reputable and I never quote what they say. smoothdeb
There are so many hypothesis out there about what Morgellons is, they are not theories, because a theory is a tested hypothesis. In fact, from what I can tell - so far, as of today 11/21/08 - very little factual information is available to help us figure out what this is, what is causing it, how to manage and maintain it, and most of all how to cure it. The Medical Professionals have not taken our condition seriously and when we sought them out, we were called delusional. We have been forced to go into hiding, some of us quarantining ourselves from our friends and families - not even knowing if Morgellons is contagious. We are having to experiment with over-the-counter solutions, and household items that seemingly do not work to rid us of the pathogens, all we have at this time is the Internet to learn from each what we have found to help manage this terrible disease. People's lives have been and continue to be destroyed by this illness and yet, as of today - we are still getting very little support. We have to raise public awareness, to possibly get enough people involved that can get us some quick research done to inform our Health Care Professionals on what to look for and how to threat us. Supposedly, in a statement from Dr. Hildergard, 1,000 people a day, worldwide are showing signs of having this new epidemic disease. This is very alarming! The CDC is a military run organization, part of our Government that for whatever reason, has been totally ignorning Morgellons since 2002. They are currently in the process of a $300,000 study of 500 people in Oakland, CA - that's $5000 allocated for each person? And, we have to wait until next year to get any of these results. We are in a lot of trouble and we need help and we need to figure out how to get it. At this time, it doesn't appear that our Government Health Organizations are too much interested, in what has happened to us? What can we do? How can I or you, help wake up the people that have the most potential to help us? The clock is ticking and every day counts.
My names sal, I've been diagnosed with delusional parastosis, follicleides, eczema, gout. It's been a little over a year and numerous emergency room visits, doctor visits, dermatologist visits, I'm financial destroyed, I've lost everything I owned. About a year and a half ago the visible symptoms started.. A year ago all the other symptoms started, 3 months ago I found out what Morgellons symptoms are, I'm so sad that this is happening to me, I've been told so many times its in my head that I wanted to believe them but the more I research this disease what I prayed was a bad dream its confirmed that this is real by others that suffer from this horrific disease.
Hello Judy, that was my mothers name. My name is Gina I am 48,a widow,from Independence Missouri I have had skin problems for 20 years started as hives which has manifested in many ways.Doctors have never been able to find out what was causing them.Just found out about MORGELLONS ABOUT 5 years ago. I have pictures that are really disturbing and no real support. My faith in God is what has sustained me.I am very sick now all kinds of surgery would love to talk to you further.God Bless
Hello Peaceplayer, I am so happy you came here as the messages are pretty old I did not know it was active any longer. I have had M for about 10 years. It first began with the rapid changes in my face which was the biofilm spreading on me, although I did not know it at the time. It was in 32008 that I first felt like something was moving on me. I have gotten rid of much of the biofilm build up but still have the movements...and of course like anyone else, most Drs. think I am delusional. Please tell me more about yourself. I hope we can become good friends as we go along here. I have so much to tell you and I'm sure you so as well. It will be nice getting to know each other. Looking forward to hearing back from you, judytoo
Judy, There doesn't seem to be much going on here. Glad to see you're trying to stimulate interest. I am crunching on a time-sensitive project for The CEHF. Stopped to check this out when I got the email notice. Might want to direct anyone to our FB site and/or home page website for the present. Sunny
I am creating this new message in hopes of waking up this Community again. There has been much that has happened in the 5 years anyone has been here. So, before I go any further, I am going to wait and see if I get any response to this or if the group has completely died, like we wish M would.
I have put my theory and observations on Lymebusters.com - in order to be 'centralized' in one place. Here is the link to my thread, you can reach me there: http://lymebusters.proboards39.com/index.cgi?board=theories&action=display&thread=11709&page=1
|Dr. Omar M. Amin's Parisitology Center Inc.||
Parasitology Center, Inc. has been working with Morgellons (hereafter referred to as Neuro-cutaneous Syndrome NCS) for over 15 years which Dr. Amin described from patients experiencing dermatological abnormalities (elevated itchy skin sores that may develop into mucoid lesions) and neurological symptoms (movement, pin prick or crawling sensations) caused by toxic exposures to a wide variety of factors. They provide a comprehensive and definitive evaluation including blood bio-compatibility testing, among others, and design a management program for individual patients' rehabilitation.
|The Charles E. Holman Foundation||
The Charles E. Holman Foundation is a grassroots organization that supports research, education, diagnosis and treatment of Morgellons Disease.
Ultimately, we seek discovery of it's cause and cure.
The Charles E. Holman Foundation exists to play an integral role in funding scientific research and spreading the understanding of Morgellons Disease to others.
The Charles E Holman Foundation is a 501(C) 3 Non-profit organization.
Our Mission: To create awareness and find factual knowledge about Morgellons Disease through:
>Funding and sponsorship of empirical scientific research
>Educating the medical community and the public
>Creating a patient support system
>Bringing accurate information to local, state and federal health agencies to enhance recognition for appropriate government action within their designated responsibilities and duties under the law.
Our Vision: We seek discovery of the cause and a cure for Morgellons Disease.
CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.
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Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.
Visit sanfordresearch.org/CoRDS to enroll.
I'm a 44 yr old disabled female Marine Veteran. I'm a writer. I'm a Morgellon's Disease victim. For now that's all I am as this disease is consumed every minute of every day...
After lots of symproms and misdiagnoses I was diagnosed with Lyme and Bartonella via PCR testing last April (when Covid was exploding and things were shutting down fast)--but...
I love to communicate with others, be...
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