Hello everyone, I am one of the many RNs with this dread disease. Early on, I had an MI scan done (head) that revealed lesions in the white matter of the brain. These could never be explained. I have always felt this was a significate finding in Morgellons Disease. Presently, I am trying to get a neurologist to review as many MRI scans as possible to see if there are any commonalities or other issues within them. If anyone has had a MRI Scan of the brain (head) since or even prior to contracting Morgellons and would be intersted in taking part, please send me an email at sunnyand7777@yahoo.com. If this works out, there should not even be a cost since most medical facilities will send scans, reports, etc. to another medical provider at no charge to the patient. I sure hope this continues to be true. Please pass this request on to others who might be interested. Thanks! Sunny

I have had a recent Brain Scam

I have had several mri scans following a diagnosis of "empty cella syndrome". The first mri showed seizure activity. Three scans have been done since then and they all have shown seizure activity. I had been placed on seizure medication following the first mri. I did seek another opinion from a Neurologist because I have never had a seizure. He agreed with me and took me off the meds. My mri's continue to come back showing seizure activity and I continue to remain seizure free. My M.D. cannot explain why the tests show one thing, and yet I don't have seizures. I have not mentioned Morgellons to any physician due to articles I've read from Morgellons sufferers. I do not doubt that I have Morgellons. I have all the symptoms.

Sunnyand7777, I have had Morgellons since 2010 and I have scans showing lesions on my white matter.  Happy to help you! 

Topsailislandgurl@gmail.com

910.388.4835

Topsail Island, NC

 

I have morgellons, and I have MRI scans too.  If they are helpful.