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Seeking Morgellons Patients with MRI Scans

sunnyand7777 Message
17 Jun 2009, 11:00 PM

Hello everyone, I am one of the many RNs with this dread disease. Early on, I had an MI scan done (head) that revealed lesions in the white matter of the brain. These could never be explained. I have always felt this was a significate finding in Morgellons Disease. Presently, I am trying to get a neurologist to review as many MRI scans as possible to see if there are any commonalities or other issues within them. If anyone has had a MRI Scan of the brain (head) since or even prior to contracting Morgellons and would be intersted in taking part, please send me an email at If this works out, there should not even be a cost since most medical facilities will send scans, reports, etc. to another medical provider at no charge to the patient. I sure hope this continues to be true. Please pass this request on to others who might be interested. Thanks! Sunny
Peaceplayer Message
10 Dec 2013, 05:38 PM

I have had a recent Brain Scam
Josephine Message
21 Dec 2013, 04:09 PM

I have had several mri scans following a diagnosis of "empty cella syndrome". The first mri showed seizure activity. Three scans have been done since then and they all have shown seizure activity. I had been placed on seizure medication following the first mri. I did seek another opinion from a Neurologist because I have never had a seizure. He agreed with me and took me off the meds. My mri's continue to come back showing seizure activity and I continue to remain seizure free. My M.D. cannot explain why the tests show one thing, and yet I don't have seizures. I have not mentioned Morgellons to any physician due to articles I've read from Morgellons sufferers. I do not doubt that I have Morgellons. I have all the symptoms.