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The Power of Community: How Patient Communities Provide Hope and Help Further Rare Disease Research (Patient Navigation)

Publication date: 6 Mar 2018

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We look at the importance of patient communities for providing support to one another, and for helping further rare disease research. Austin Letcher, the senior research associate for the Coordination of Rare Diseases at Sanford Health (CoRDS) tells us how a free database provides information for both patients and researchers.