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Project rare and undiagnosed flyer with qr code

Online Study for Families with Children Having Undiagnosed Medical Conditions or a Rare Disease

Publication date: 16 May 2024

You are invited to participate in a study by researchers at Illinois Institute of Technology investigating the challenges and strengths experienced by families who have a child with an undiagnosed medical condition or rare disease. The goal of this study is to further our understanding of the experience and needs of families who have children with undiagnosed medical conditions and rare diseases.

We are recruiting parents/caregivers of children with undiagnosed medical condition/s to participate in an anonymous survey that takes approximately 20-30 minutes. To participate, please click (or copy and paste into your browser) the following link:

For additional information about this study, please contact Meena Chockalingam at 312-590-8436 or via email at or Nicole Ditchman at 312-567-3511 or via email at