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PANDAS

What is PANDAS?

PANDAS is a rapid onset of obsessive-compulsive disorder after a group A β-hemolytic streptococcal infection.

 

PANDAS is a rapid onset of obsessive-compulsive disorder after a group A β-hemolytic streptococcal infection.
Acknowledgement of PANDAS has not been added yet.
Prevalence Information of PANDAS has not been added yet.
Synonyms for PANDAS has not been added yet.
Cause of PANDAS has not been added yet.
Symptoms for PANDAS has not been added yet.
Diagnosis of PANDAS has not been added yet.
Diagnostic tests of PANDAS has not been added yet
Treatments of PANDAS has not been added yet.
Prognosis of PANDAS has not been added yet.
Tips or Suggestions of PANDAS has not been added yet.
References of PANDAS has not been added yet.
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Community Resources
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Clinical Trials


Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Community User List

I am the mother of a wonderful 12 yo girl who is diagnosed with Pans and CVID. She has not responded to any treatments and is progressive becoming sicker. Seeking suggestions, information and...
19 year old male just diagnosed with Pandas
My almost 5 year old son has a rare chromosome disorder, partial trisomy 11q and partial deletion 5p. He has significant medical problems and developmental delay, but he is very sweet, funny, and...
Married 30 years, mother of 2 young men. One is 27 and the other 14 years young. Careers previously centered around breeding, training and schooling horses and training students for high level...

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