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Rareshare News Articles


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Meet the Rareshare Team

Publication date: 9 Dec 2020

Podcast

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Don’t Sell Yourself Short: Having a Career after a Rare Disease Diagnosis

Publication date: 22 Jan 2020

Podcast

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How to Get Answers From Rare Disease Experts: The Rare Genomics Task Force (RGTF)

Publication date: 27 Aug 2019

Podcast

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3 Perspectives on Facing a Rare Disease: A Patient, a Caregiver, and an Expert Discuss Diagnosis and Treatment of Pulmonary Fibrosis

Publication date: 8 Jun 2019

Community: Idiopathic Pulmonary Fibrosis

Podcast

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All About Genomic Sequencing for Rare Disease Patients: A Focus on iHope

Publication date: 19 Apr 2019

Podcast

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Growing up With a Rare Disease: An Alagille Syndrome Warrior on Understanding Her Rare Disease and Participating in Research

Publication date: 17 Dec 2018

Podcast

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Coping With Your Child's Diagnosis: The Mother of a Rare Disease Patient on How She Found a Supportive Community

Publication date: 17 Aug 2018

Podcast

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A Huntington’s Disease Patient

Publication date: 16 May 2018

Community: Huntington's Disease

Podcast

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Receiving a Rare Disease Diagnosis: A Huntington’s Disease Patient Shares His Experience and Advice for Coping with a New Diagnosis (Patient Navigation)

Publication date: 14 May 2018

Community: Huntington's Disease

Podcast

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The Power of Community: How Patient Communities Provide Hope and Help Further Rare Disease Research (Patient Navigation)

Publication date: 6 Mar 2018

Podcast

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Antisynthetase Syndrome Ask the Experts Podcast Series, Session II - 11/20/2017

Publication date: 24 Nov 2017

Community: Antisynthetase Syndrome

Podcast

Content podcast

RGI/RareShare Ask the Experts Podcast Series-Antisynthetase Syndrome

Publication date: 22 Oct 2017

Community: Antisynthetase Syndrome

Podcast

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Adrenomyeloneuropathy (AMN)/Adrenoleukodystrophy (ALD) Podcast Series, Session II (06/14/2017)

Publication date: 14 Jun 2017

Community: Adrenomyeloneuropathy

Podcast

Content podcast

RGI/RareShare Ask the Experts Podcast Series-Adrenomyeloneuropathy Syndrome

Publication date: 2 Jun 2017

Community: Adrenomyeloneuropathy

Podcast

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LGLL Ask The Experts Podcast Session IV

Publication date: 18 Nov 2016

Community: Large Granular Lymphocytic Leukemia

Podcast

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Hospitals, Doctors, Medical Teams: Navigating Barriers of Rare Diseases (Patient Navigation)

Publication date: 12 Sep 2016

Community: Systemic Capillary Leak Syndrome

Podcast

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Crigler Najjar Syndrome Ask The Experts Podcast Series (05/25/2016)

Publication date: 25 May 2016

Community: Crigler-Najjar Syndrome

Podcast

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LGLL Podcast Series III (3/25/2016)

Publication date: 25 Mar 2016

Community: Large Granular Lymphocytic Leukemia

Podcast

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LGLL Podcast Session II (11/24/2015)

Publication date: 11 Nov 2015

Community: Large Granular Lymphocytic Leukemia

Podcast

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Chromosome 4q Deletion Syndrome Podcast Series: (08/10/2015)

Publication date: 10 Aug 2015

Community: Chromosome 4q Deletion Syndrome

Podcast