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Systemic Lupus Erythematosus

What is Systemic Lupus Erythematosus?

Systemic Lupus Erythematosus is an autoimmune disease in which the immune system cannot tell the difference between unhealthy and healthy cells.

 

 

Systemic Lupus Erythematosus is an autoimmune disease in which the immune system cannot tell the difference between unhealthy and healthy cells.

 

Acknowledgement of Systemic Lupus Erythematosus has not been added yet.
Synonyms for Systemic Lupus Erythematosus has not been added yet.
While the cause of Systemic Lupus Erythematosus is unknown, it is believed to be caused by a combination of environmental and genetic factors.
There are several symptoms that affect people with Systemic Lupus Erythematosus.
Name Description
Joint pain or swelling Joint pain or swelling
Muscle pain Muscle pain
Red rashes Red rashes that often occur on the face. These are also called the "butterfly rashes". These rashes are often painless and do not itch.
Fever Fever
Anemia Anemia is a deficiency of hemoglobin.
disorder details Frequent bouts of extreme fatigue.
Doctors look for a combination of symptoms. While each person will have different symptoms (hence the name "the disease of a 1000 faces"), there are some that have a higher frequency rate. One of the blood features that is often present is an anti nuclear antibody on the DNA
Diagnostic tests of Systemic Lupus Erythematosus has not been added yet
Treatments of Systemic Lupus Erythematosus has not been added yet.
Prognosis of Systemic Lupus Erythematosus has not been added yet.
Tips or Suggestions of Systemic Lupus Erythematosus has not been added yet.
References of Systemic Lupus Erythematosus has not been added yet.
Bowel Problems Created by Kat201
Last updated 24 Nov 2010, 11:06 PM

Posted by Kat201
24 Nov 2010, 11:06 PM

Hi Jacquie I think you might be right. Wheat based products do tend to make things worse. I once cut all processed food out of my diet for about a month, it was much like the atkins diet, I felt fabulous. I then started to introduce new things starting with wheat.Tto my suprise this made no difference however when I introduced milk I was immediately ill. I saw a specialist who said I was lactose intolerent I now try to avoid lactose which is difficult when you are on so much medication. I still think there is a link to wheat though i'll give it another go and see if it helps. Katrina x

Posted by Jacquie
24 Nov 2010, 04:52 AM

Hi Katrina Something that can cause abdominal pain (especially from when you are young and getting worse as you get older) is an allergy to gluten. i.e. wheat and other "flours" If you have it bad it is called Celiac disease but some people are not allergic just sensitive to it. You can't eat anything with wheat, rye, barley, oats(unless they are marked gluten free) More and more people are discovering that they have a problem with gluten and more places are carrying gluten free products. e.g. rice or bean flour breads, pasta etc. I get a lot at health food stores but regular grocery stores are carrying some things now too. There has a big increase in the last two years. Even many restaurants have gluten free items e.g. pizza & pasta/ I found a book in the library by a young woman who sounded like what you say you are going through. Her book tells how to go about becoming gluten free. It is amazing how many things have wheat in them. e.g. gum, ketchup, popsicles, At my doctor's suggestion, I have gone without gluten for two years now and it has been a big help to me to control my steroid induced diabetes with no medicines. Jacquie

Posted by Kat201
23 Nov 2010, 03:31 PM

Hi Jacquie I've always been like that since I was a child however it hasn't gone away and is becoming much worse. Not opening my bowels for weeks and then not having any control of my bowels when I have to take copious amounts of laxatives. The abdominal pain is becoming quite unbearable. It may be something else not connected to the lupus so they have agreed to me having a general anaesthetic to investigate. The problem is lupus does tend to get the blame for everything. I'll let you know how I get on. Katrina x

View Full Thread (6 more posts)
prednisone Created by Jacquie
Last updated 13 Jul 2008, 06:48 PM

Posted by Jacquie
13 Jul 2008, 06:48 PM

If you have to take prednisone to control the Lupus, how low a dosage will be effective? When taking Hydroxyquine & Methotrexate I had a flare of Lupus which caused me to have Shrinking Lung Syndrome and I lost half the capacity of my lungs. A combination of Prednisone and Immuran have settled everything down but I am having side effects from too much prednisone.

Community External News Link
Title Date Link
Community Resources
Title Description Date Link
Lupus Foundation of America

The Lupus Foundation of America, Inc. (LFA) is the foremost national nonprofit voluntary health organization dedicated to finding the causes of and cure for lupus and providing support, services and hope to all people affected by lupus.

03/20/2017
Lupus Canada

Formed in 1987 through the association of Canadian lupus organizations, Lupus Canada was federally registered as a non-profit charity in February 1988 and incorporated in March 1989 with the objectives of encouraging cooperation among the lupus organizations in Canada and promoting public awareness and general education about lupus.

03/20/2017

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CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

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After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Bowel Problems

Created by Kat201 | Last updated 24 Nov 2010, 11:06 PM

prednisone

Created by Jacquie | Last updated 13 Jul 2008, 06:48 PM


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