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Spinocerebellar Ataxia

What is Spinocerebellar Ataxia?

Spinocerebellar Ataxia is a progressive group of rare disorders affecting muscle movements.

 

Spinocerebellar Ataxia is a progressive group of rare disorders affecting muscle movements.
2.15http://www.orpha.net
Synonyms for Spinocerebellar Ataxia has not been added yet.
Cause of Spinocerebellar Ataxia has not been added yet.
Symptoms for Spinocerebellar Ataxia has not been added yet.
Diagnosis of Spinocerebellar Ataxia has not been added yet.
Diagnostic tests of Spinocerebellar Ataxia has not been added yet
Treatments of Spinocerebellar Ataxia has not been added yet.
Prognosis of Spinocerebellar Ataxia has not been added yet.
Tips or Suggestions of Spinocerebellar Ataxia has not been added yet.
References of Spinocerebellar Ataxia has not been added yet.
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Clinical Trials


Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Community User List

I have hereditary Spinocerebellar Ataxia 8. For most of my life we never knew what was causing my symptoms. It was not until 2003 that I received the first (of many) diagnoses. This began my jou...
My sister has been diagnosed with Cerebral Atrophy and I want to find out more about it and try to help her cope with it.
Diagnosed with Ataxia in Fall 2011. Have had head injuries in youth playing sports, furthered in adulthood with nearby lightening strike, falling from a 4-story scaffolding that collapsed, auto acc...
I am a 43 yr old male recently diagnosed with SCA2
I had a Heart Attack 25 years ago and I had quadruple bypass surgery a year later. I am now taking an assortment of the usual heart medications. About 5 years ago I was diagnosed as having type 2 d...

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