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SCA 27 or related conditions

cfertich Message
29 Mar 2020, 06:36 PM

Looking to connect with others who have an SCA diagnosis. My 15 year old daughter was just diagnosed with SCA 27. We unfortunately can't get into see her geneticist right now because of Covid 19 so am hoping this might be an avenue to connect with others around the world with a similar diagnosis. We were told there have only been 45 cases worldwide so any info would be great. Thanks and stay out there, especially right now.