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Spastic Paraplegia

What is Spastic Paraplegia?

Spastic Paraplegia is a group of genetic disorders characterized by progressive spasticity in the lower limbs.

 

Spastic Paraplegia is a group of genetic disorders characterized by progressive spasticity in the lower limbs.
Acknowledgement of Spastic Paraplegia has not been added yet.
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Synonyms for Spastic Paraplegia has not been added yet.
Cause of Spastic Paraplegia has not been added yet.
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Diagnostic tests of Spastic Paraplegia has not been added yet
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Tips or Suggestions of Spastic Paraplegia has not been added yet.
References of Spastic Paraplegia has not been added yet.
Anyone want to talk about FSP? Created by Krialk
Last updated 10 Dec 2019, 09:23 PM

Posted by Krialk
10 Dec 2019, 09:23 PM

Hi,

im 52 and was diagnosed in 2012 with FSP (familiar spastic paraperesis.) My mother spent much of her life in a wheel chair and wasn't diagnosed until I was diagnosed. I have a maternal aunt who shows symptoms and my grandmother and great grandmother also had symptoms but were not diagnosed.

i know this is a frustrating and painful disease. Anyone want to talk about it? What was your path to diagnosis? Any tips you've figured out for handling it? Any special FSP or HSP hacks?? Just need an outlet to complain? Hey - we all need to be able to complain and be angry at times. Go ahead and vent to those of us who understand. Any responses welcome!

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Visit sanfordresearch.org/CoRDS to enroll.

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Anyone want to talk about FSP?

Created by Krialk | Last updated 10 Dec 2019, 09:23 PM


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