im 52 and was diagnosed in 2012 with FSP (familiar spastic paraperesis.) My mother spent much of her life in a wheel chair and wasn't diagnosed until I was diagnosed. I have a maternal aunt who shows symptoms and my grandmother and great grandmother also had symptoms but were not diagnosed.
i know this is a frustrating and painful disease. Anyone want to talk about it? What was your path to diagnosis? Any tips you've figured out for handling it? Any special FSP or HSP hacks?? Just need an outlet to complain? Hey - we all need to be able to complain and be angry at times. Go ahead and vent to those of us who understand. Any responses welcome!