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SAPHO Syndrome

What is SAPHO Syndrome?

SAPHO Syndrome is a disorder characterized by synovitis, acne, pustulosis, hyperostosis, and osteitis.

 

SAPHO Syndrome is a disorder characterized by synovitis, acne, pustulosis, hyperostosis, and osteitis.
Acknowledgement of SAPHO Syndrome has not been added yet.
Prevalence Information of SAPHO Syndrome has not been added yet.
Synonyms for SAPHO Syndrome has not been added yet.
Cause of SAPHO Syndrome has not been added yet.
There are several symptoms that affect people diagnosed with SAPHO Syndrome.
Name Description
Synovitis Synovitis
Acne Acne on the face and upper back.
Pustulosis Pustulosis is an inflammatory skin condition resulting in large blister-like areas.
Hyperostosis Hyperostosis
Osteitis Osteitis is inflammation of bone
Diagnosis of SAPHO Syndrome has not been added yet.
Diagnostic tests of SAPHO Syndrome has not been added yet
Treatment for SAPHO Syndrome is based on symptoms.
Prognosis of SAPHO Syndrome has not been added yet.
Tips or Suggestions of SAPHO Syndrome has not been added yet.
References of SAPHO Syndrome has not been added yet.
CRMO Created by katerubino
Last updated 9 Apr 2014, 04:04 PM

Posted by ACJ0926
9 Apr 2014, 04:04 PM

Dr Polly Ferguson at University of Iowa Iowa city iowa

Posted by katerubino
28 Feb 2014, 10:20 PM

Looking for doctors, treatment and medicines that will treat CRMO and stop it's progression.

CRMO Created by arindam
Last updated 28 Feb 2014, 10:13 PM

Posted by katerubino
28 Feb 2014, 10:13 PM

I am also looking for other people with CRMO. I am searching for doctors, treatment, medicines and hope.

Posted by arindam
25 Jul 2012, 05:47 AM

i am also looking for the same url. as soon as i get the url i will post. Tmeems do u know any person who is suffring from CRMO if u know please send me the email i want to interact with the person.

Posted by Tmeems
25 Jul 2012, 04:09 AM

I have been desperately looking for months and I cannot find the "active" part of stop caid for crmo. Can you give me the exact url? All i find is outdated blogs with ads for perfume. Can you please point me in the right direction?

View Full Thread (3 more posts)
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CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

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After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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CRMO

Created by katerubino | Last updated 9 Apr 2014, 04:04 PM

CRMO

Created by arindam | Last updated 28 Feb 2014, 10:13 PM


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