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arindam Message
23 Jul 2012, 05:41 AM

i need information regarding chronic recurrent multifocal osteomyelitis information like best treatments available, best doctors & hospital with address phone number. if possible patients name address & phone number just to collect their experience & views. looking for help
mummysairsair Message
24 Jul 2012, 04:15 AM

Hi arindam, With all due respect, i would hope that most people are cyber aware enough not to just be giving out their personal details over the Internet as you have requested! However if you are interested in learning more about CRMO and how it affects children and their families, you may find organizations such as Stop CAID are able to put you in touch with local health providers and support groups. There is also a fairly active Facebook group for teens and parents of younger children coping with CRMO. Kind regards :)
arindam Message
24 Jul 2012, 06:37 AM

Thanx everyone. i am looking for some valuable information. if it is possible name few patients with their email address. like to keep in touch with them. seeking for your kind help. my email id if any one like to send any data regarding CRMO, patients & their experience they can send it to my mail. Also like to request all community members to help me. thanking everyone once again.
Tmeems Message
25 Jul 2012, 04:09 AM

I have been desperately looking for months and I cannot find the "active" part of stop caid for crmo. Can you give me the exact url? All i find is outdated blogs with ads for perfume. Can you please point me in the right direction?
arindam Message
25 Jul 2012, 05:47 AM

i am also looking for the same url. as soon as i get the url i will post. Tmeems do u know any person who is suffring from CRMO if u know please send me the email i want to interact with the person.
katerubino Message
28 Feb 2014, 10:13 PM

I am also looking for other people with CRMO. I am searching for doctors, treatment, medicines and hope.