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Relapsing Polychondritis

What is Relapsing Polychondritis?

Relapsing polychondritis is a rare disorder characterized by the deterioration of the cartilage.

 

 

 

 

Relapsing polychondritis is a rare disorder characterized by the deterioration of the cartilage.

 

 

 

Acknowledgement of Relapsing Polychondritis has not been added yet.
3.5http://www.orpha.net
Synonyms for Relapsing Polychondritis has not been added yet.
Cause of Relapsing Polychondritis has not been added yet.
Symptoms for Relapsing Polychondritis has not been added yet.
Diagnosis of Relapsing Polychondritis has not been added yet.
Diagnostic tests of Relapsing Polychondritis has not been added yet
Treatments of Relapsing Polychondritis has not been added yet.
Prognosis of Relapsing Polychondritis has not been added yet.
Tips or Suggestions of Relapsing Polychondritis has not been added yet.
References of Relapsing Polychondritis has not been added yet.
Discussion Created by geoergettecb8
Last updated 30 Jul 2014, 12:17 PM

Posted by geoergettecb8
30 Jul 2014, 12:17 PM

I am interested in communicating with rjones, if possible. I am in northern VA and am in poor health and frustrated with treatment by my physicians. If you are willing to speak via email or just on this forum it would be greatly appreciated. Thank you. Georgette

Treatment success Created by kssaari
Last updated 9 Apr 2014, 10:44 AM

Posted by geoergettecb8
9 Apr 2014, 10:44 AM

Hi, I also was also diagnosed last fall, finally, I knew I had it for several years and had to search for the right doctor to properly diagnose me. I'm undergoing treatment with methotrexate and low dose steroids but haven't been having much success. In the beginning the treatment made me feel like a completely new person, my old self, I guess. Lately symptoms are returning and new symptoms have emerged. I am seeing my doctor today, and will post later. Thank you for sharing. Georgette

Posted by Sisvh1
8 Apr 2014, 11:24 PM

There can be success in putting this disease in remission with the right meds. It is a trial and error solution not ideal but all we have. There is an extensive forum on Facebook. Just type in Relapsing Polychondritis. I have had RP since 2007 but there are people on the Facebook site that have had it for much longer. I hope this helps.

Posted by kssaari
4 Jan 2014, 03:37 AM

I have recently been diagnosed with relapsing polychondritis. Has anyone had some success in treating this? I am from the Midwest and was wondering what is available out there.

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Created by geoergettecb8 | Last updated 30 Jul 2014, 12:17 PM

Treatment success

Created by kssaari | Last updated 9 Apr 2014, 10:44 AM


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