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Treatment success

kssaari Message
4 Jan 2014, 03:37 AM

I have recently been diagnosed with relapsing polychondritis. Has anyone had some success in treating this? I am from the Midwest and was wondering what is available out there.
Sisvh1 Message
8 Apr 2014, 11:24 PM

There can be success in putting this disease in remission with the right meds. It is a trial and error solution not ideal but all we have. There is an extensive forum on Facebook. Just type in Relapsing Polychondritis. I have had RP since 2007 but there are people on the Facebook site that have had it for much longer. I hope this helps.
geoergettecb8 Message
9 Apr 2014, 10:44 AM

Hi, I also was also diagnosed last fall, finally, I knew I had it for several years and had to search for the right doctor to properly diagnose me. I'm undergoing treatment with methotrexate and low dose steroids but haven't been having much success. In the beginning the treatment made me feel like a completely new person, my old self, I guess. Lately symptoms are returning and new symptoms have emerged. I am seeing my doctor today, and will post later. Thank you for sharing. Georgette