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Pyoderma Gangrenosum

What is Pyoderma Gangrenosum?

Pyoderma Gangrenosum is a rare ulcerative cutaneous disorder that causes tissue to become necrotic.

 

Pyoderma Gangrenosum is a rare ulcerative cutaneous disorder that causes tissue to become necrotic.
Acknowledgement of Pyoderma Gangrenosum has not been added yet.
Prevalence Information of Pyoderma Gangrenosum has not been added yet.
Synonyms for Pyoderma Gangrenosum has not been added yet.
Cause of Pyoderma Gangrenosum has not been added yet.
Symptoms for Pyoderma Gangrenosum has not been added yet.
Diagnosis of Pyoderma Gangrenosum has not been added yet.
Diagnostic tests of Pyoderma Gangrenosum has not been added yet
Treatments of Pyoderma Gangrenosum has not been added yet.
Prognosis of Pyoderma Gangrenosum has not been added yet.
Tips or Suggestions of Pyoderma Gangrenosum has not been added yet.
References of Pyoderma Gangrenosum has not been added yet.
Facebook Groups for PG Created by addude13
Last updated 18 Jul 2011, 09:03 PM

Posted by addude13
18 Jul 2011, 09:03 PM

https://www.facebook.com/groups/368163159232?ap=1 and https://www.facebook.com/groups/56007379235?ap=1 are available to PG patients on Facebook! Plenty of info and support are available there. Best, Harley

Need Advice for Treatment! Created by nickcole
Last updated 4 Jun 2009, 12:44 PM

Posted by shirley_ann
4 Jun 2009, 12:44 PM

Hi Kerry, I don't mind posting my email address on here, annscd08@yahoo.com, if you want to contact me. It may be more helpful for others though to discuss successful treatments here. I'm still struggling with healing the ankle ulcer so I'll look into the Hydrablue that you mentioned. I haven't been able to wear a full shoe for a year now. I would love to go the beach so I need to get this healed. What nutritional supplements did you use? I found that when I started the SCD diet that my old scar healed up completely and now you cannot even see where it was. I'm hoping the same thing for my ankle. The first one happened with a tiny nick from a razor when shaving my leg and the second happened when I had an accupuncture treatment. Maybe having some of that hydrablue on hand will make me feel more confident, just in case. I went to a homeopathic doctor today for the first time for immune system treatments. He says that the pyoderma is the immune system reacting at the cellulare level and seems to believe he can get my immune system in balance with various homeopathic treatments. I'll let you know how that goes. Please try the SCD diet for your daughter. It's a healthy diet and it works wonders for many inflammatory diseases, and even autisim. It's a bit strict but well worth it. There is a website for parents of kids on the SCD diet called pecanbread, it has a lot of great info on it.

Posted by kerry
4 Jun 2009, 10:10 AM

Thanks for all the information Shirley Ann. I can't figure out from this site how to contact you directly. As I mentioned in response to your other post, we had great success with nutritional supplements (some of which we ground up and applied topically) as my daughter did not respond well to Prednisolone. We had been told it might take up to a year to heal the ulcers but managed to do so in 10 weeks and had great success with the scar tissue too. Would be happy to tell you in detail what we did. But not sure how I can email you directly?

Posted by shirley_ann
3 Jun 2009, 03:23 PM

I've had only two episodes of PG and pray God to never have another one. I have been without medical help as no one here has ever heard of it or treated it and a plastic surgeon in the hospital cut away some skin without my permission and against my protest that it would exascerbate it, which it did, turning 2 ulcers into 10 new ones. I found relief by searching internet research articles and I treated it successfully with prednisone, .5 milligram per kilo of my body weight. The ulcers responded immediately but still have taken a full year to heal and are not healed fully yet. They have closed but the skin is still very tender and I can't wear shoes as it's on my ankle. I also used an over the counter steroid/antibiotic cream. I have heard that it's often related to IBD, which I have, Crohn's, and each bout of PG came after a flare-up of the Crohn's. So I sought a cure for the Crohn's that was not a deadly immune suppressant and I found it in the the SCD, Specific Carbohydrate Diet. The book, Breaking the Viscious Cycle, has been a lifesaver for me. I have had no Crohn's symptoms for the past 10 months I've been on the diet. I now take no medicine for the disease, only diet. It's the first time in 30 years that I have been free of the Crohn's symptoms. In relieving the Crohn's I'm hoping that the PG will never appear again. Though I am always very fearful of a cut or puncture that may turn into this nightmare ulcer. If you want to know more about using diet to relieve auto immune diseases, you can contact me or search "SCD" or Specific Carbohydrate Diet, or Breaking the Vicious Cycle".

View Full Thread (2 more posts)
Coping with chronic skin condition Created by kerry
Last updated 4 Jun 2009, 10:05 AM

Posted by kerry
4 Jun 2009, 10:05 AM

Hi Shirley Ann, I'm interested to read about your success with diet. We have also found great success with nutritional supplements and detoxing our house so that all the personal care products we use have no harmful ingredients. My daughters scar is also healing really well which I put down to the Hydrofera blue dressing and a specific oil I use.

Posted by shirley_ann
3 Jun 2009, 03:29 PM

I'm so sorry for your child who has this, I treat each scrape or scratch as if it may become PG, but I'm not really sure what to do except put on some steroid cream and bandaid and wait 5 days. I personally believe that if our sed rate is low and near the normal range scrapes won't turn into PG so I try very hard to keep my inflammation down with diet.

Posted by kerry
7 Apr 2009, 05:26 AM

As the mother of a pyoderma gangrenosum sufferer I find it very difficult to work out how to cope with scrapes and scratches. Do we need to treat each one as a potential lesion?

Hydrofera Blue Created by kerry
Last updated 7 Apr 2009, 05:27 AM

Posted by kerry
7 Apr 2009, 05:27 AM

Has anyone else used Hydrofera Blue wound dressing? We are trying to access it in Australia but having problems getting the hospital to order it?

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Facebook Groups for PG

Created by addude13 | Last updated 18 Jul 2011, 09:03 PM

Need Advice for Treatment!

Created by nickcole | Last updated 4 Jun 2009, 12:44 PM

Coping with chronic skin condition

Created by kerry | Last updated 4 Jun 2009, 10:05 AM

Hydrofera Blue

Created by kerry | Last updated 7 Apr 2009, 05:27 AM


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