Prinzmetal's Angina is a disorder characterized by cycles of angina (cardiac chest pain) at when resting.
I thought I'd start a thread here since it doesn't appear we have had a chat as a group as of yet. I'm in my early 40's and was diagnosed with Prinzmetal's angina in 2013. I have only had one attack that I know of, which landed me in the hospital. I had an angiogram and that is how they figured out my diagnosis. I have been on medications since then, which appear to have controlled it pretty well, at least so far. I am currently having issues with hypertension, though.
Do you know anyone personally that has Prinzmetal's? My doctor told me that out of the hundreds of patients she sees, only 3 of us have it, and the other 2 are smokers. I'm not. I wish there was more information out there about this disorder. Very little to read up on.
I'm looking forward to chatting with you. :)
CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.
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Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.
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w/"panic-anxiety attacks-per ER visits
1st MI in 2002-no blockage-2nd in 2003, 3rd in 2004,
4th in 2005- Finally in 2006,...
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