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Multicentric Reticulohistiocytosis

What is Multicentric Reticulohistiocytosis?

Multicentric Reticulohistiocytosis is a rare disorder characterized by the proliferation of immune cells, causing arthritis and skin nodules.

 

Multicentric Reticulohistiocytosis is a rare disorder characterized by the proliferation of immune cells, causing arthritis and skin nodules.
Acknowledgement of Multicentric Reticulohistiocytosis has not been added yet.
Synonyms for Multicentric Reticulohistiocytosis has not been added yet.
Cause of Multicentric Reticulohistiocytosis has not been added yet.
Symptoms for Multicentric Reticulohistiocytosis has not been added yet.
Diagnosis of Multicentric Reticulohistiocytosis has not been added yet.
Diagnostic tests of Multicentric Reticulohistiocytosis has not been added yet
Treatments of Multicentric Reticulohistiocytosis has not been added yet.
Prognosis of Multicentric Reticulohistiocytosis has not been added yet.
Name Description
Itching One characteristic of this disease is a severe skin itching. All manner of drugs and lotions have been tried with no success. We found an anticeptic product called DETTOL helped the most. It seems to numb the skin. It may be used on its own, mixed 50/50 with water or even add a little baby oil to prevent the skin drying too much.
References of Multicentric Reticulohistiocytosis has not been added yet.
New Members Created by pdonner
Last updated 1 Mar 2011, 12:30 PM

Posted by pdonner
1 Mar 2011, 12:28 PM

We currently have MRH members from Canada, Brazil, Japan, England, Australia and in the United States. Checkout our website to connect with us and then we will contact you via email. Many of our members are also on Facebook. This is such a rare disease but we offer support to each other! Feel free to contact us! www.mrsupport.org

Sou Portadora Created by aldagrac
Last updated 21 Mar 2010, 01:32 AM

Posted by aldagrac
21 Mar 2010, 01:32 AM

*Hello I wonder if the other colleagues, were vaccinated for influenza A H1N1. Were authorized by their doctors? Had any side effects? If you have not already made, do you intend to take? Light and Peace, Always* Alda Graciete March 20, 2010

Posted by aldagrac
28 Feb 2010, 10:49 PM

I bearer Multicentric Reticulohistiocytosis. I'm Brazilian. I have had success with treatment and have managed to get away from crisis, but I Presevo enough, because any light makes my skin changed, so do not sunbathe, take care of household light bulbs, leave little homework, I can maintain a normal domestic routine. For two (2) years took the immunosuppressant Biological Remicade (infliximab), but a low immune causing a Herpes Zoster, stopped com.es biological Today I take daily prednisone, meloxicam and 1 day / week methotrexate 25 mg. Just had a great August/2004 in crisis, left me in bed for almost 3 months, but I have learned to live with her one and have a fulfilling life. I set a blog with information and although it is in Portuguese, with a help of Google today, we can translate any language. (Http: / / reticulo-histiocitose.spaces.live.com /) I would like to maintain contact with other patients or family members.

Thank You Created by pdonner
Last updated 3 Mar 2010, 06:27 PM

Posted by pdonner
3 Mar 2010, 06:27 PM

Thanks Liz and Alda for introducing me to this website. Hopefully we'll be able to connect with others and share helpful information!

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Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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New Members

Created by pdonner | Last updated 1 Mar 2011, 12:30 PM

Sou Portadora

Created by aldagrac | Last updated 21 Mar 2010, 01:32 AM

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Created by pdonner | Last updated 3 Mar 2010, 06:27 PM


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