I bearer Multicentric Reticulohistiocytosis. I'm Brazilian.
I have had success with treatment and have managed to get away from crisis, but I Presevo enough, because any light makes my skin changed, so do not sunbathe, take care of household light bulbs, leave little homework, I can maintain a normal domestic routine.
For two (2) years took the immunosuppressant Biological Remicade (infliximab), but a low immune causing a Herpes Zoster, stopped com.es biological
Today I take daily prednisone, meloxicam and 1 day / week methotrexate 25 mg.
Just had a great August/2004 in crisis, left me in bed for almost 3 months, but I have learned to live with her one and have a fulfilling life.
I set a blog with information and although it is in Portuguese, with a help of Google today, we can translate any language.
(Http: / / reticulo-histiocitose.spaces.live.com /)
I would like to maintain contact with other patients or family members.