Moyamoya Disease is a rare disorder caused by blocked arteries at the base of the brain in the the basal ganglia.
|Transient Ischemic Attacks (TIA)||Transient Ischemic Attacks (TIA) are transient strokes that last only a few minutes and occur when the blood supply to part of the brain is briefly interrupted.|
|Cerebral Hemorrhage||Cerebral hemorrhaging is bleeding inside the brain, between the brain and the membranes that cover the brain, between the skull and the covering of the brain, or bleeding between the layers of the brain's covering.|
Thanks Claris, I am active in both Moyamoya.com and the Moyamoya Facebook site set up by Tara McInnes in the USA. No one my age. I live in Canada. I am hoping that if I use enough different forums, I might connect! ...although I note that this forum is not very active. Take care, Pat
Hi PatriciaH, I don't know of anyone but perhaps check out Moyamoya.com and see if you can reach out to any members there? Best wishes, Claris
Hello...any older adults with Moyamoya? I am 72 and recently diagnosed...would appreciate anyone older with MM.
I was my neurosurgeons first Moya Moya patient, if I had know that before surgery I would have went somewhere else. Was done 11-26-12 at St. Louis University Hospital. Second stroke in 6-2013 had second right sided surgery on 11-12-13 by Dr. Steinberg at Stanford, 6 month post testing showed I still have blood flowing to my brain, instead of pre-surgery neg. flow.
Hi there! There is a Moyamoya center at Stanford University that is headed by Dr. Steinberg who is the chief neurosurgeon and also does research on the disease. I have heard many good things about him. I myself had my surgeries performed in Berlin, Germany (I live in the U.K. now) and the Dr. there also researches the disease and has a lot of experience with Moyamoya patients.
I live in Nashville Tenn. And recently went through both sugeries on both sides of the brain. There is a excellent Dr. @ Vanderbilt Medical Center who is well experienced in treating Moyamoya and his name is Dr. Robert Mericle..what a name huh? And he truly is a miracle. My first surgery was 15 1/2 long. I went straight to intensive care and came home 2 days later..My head wasn't even shaved only a partial cut that he needed to do for the surgery. 1st surgery was on 10/23/06..most recent 6/2/08. No major complications whatsoever. I would recommend this Dr. to anyone with MM.
Hello everyone! I just wanted to share that yesterday (March 11, 2011), I ran a Half Marathon in 2hours and 50minutes....I know, not exactly the best finishing time, but the point is, I did it and I finished running 13 miles! This means that guess what? I believe that you all can do ANYTHING you set your mind to. Be confident, be happy and be true to yourself and go for your dreams and goals!!!
Hello Everyone! I am also a member of Moyamoya.com (you should sign up if you are not already) and the creator of the site has made an agreement with Dr. Steinberg of Stanford and Dr. Scott from Boston Hospital. A new Moyamoya.com Sponsor T-shirt is being sold on the website and 30% of the proceeds will be donated towards each of the hospitals (15% each) for Moyamoya research. Please send this out to as many people as you know to help raise money for this! I have already bought my shirt =) Have a great day everyone and I hope you are all doing well with managing your disease! http://www.moyamoya.com/khxc/index.php?app=ccp0&ns=prodshow&ref=sponsort Sincerely, Claris M. Diaz
Hi, I agree as well. I had my 1st surgery Oct. 0f 08 then the second, which was also MUCH MUCH harder Nov. of 08. I am also still recovery from the second surgery. And yes, I have been quite depressed since. I've been having a lot of ups and downs, days when I feel like I can get through it, and other days, when I just want to give up.
Eileen, I myself had my second brain surgery in June 08, I also suffer from depression. I think some of it is normal. My Dr. has told me so. The body goes through so much. Do you also have seizures if I may ask? I hope you have or are starting to heal by now. I wish you all the best. My Dr. also says the second surgery is almost always harder than the first. I know it was for me. I was in the hospital for 2 days for the first and the surgery lasted for 15 1/2 hours. This last one I was in the hospital for a week, and I am still recovering 6 months later, slowely but surely. God Bless You.
i have had moyamoya since may 08 then i had brain surgery i've been always depressed is that normal?
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Created by RareshareTeam | Last updated 20 Jan 2019, 03:08 AM
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