Cookies help us deliver our services. By using our services, you agree to our use of cookies. Learn more

Intracranial Lipoma

What is Intracranial Lipoma ?

Intracranial Lipomas are rare congenital malformations, usually pericallosal asymptomatic midline lesions.

 

 

Intracranial Lipomas are rare congenital malformations, usually pericallosal asymptomatic midline lesions.

 

Acknowledgement of Intracranial Lipoma has not been added yet.
Prevalence Information of Intracranial Lipoma has not been added yet.
Synonyms for Intracranial Lipoma has not been added yet.
Cause of Intracranial Lipoma has not been added yet.
Symptoms for Intracranial Lipoma has not been added yet.
Diagnosis of Intracranial Lipoma has not been added yet.
Diagnostic tests of Intracranial Lipoma has not been added yet
Treatments of Intracranial Lipoma has not been added yet.
Prognosis of Intracranial Lipoma has not been added yet.
Tips or Suggestions of Intracranial Lipoma has not been added yet.
References of Intracranial Lipoma has not been added yet.
Just to say hello. Created by Robert
Last updated 25 Dec 2010, 05:12 AM

Posted by bebeinmd
25 Dec 2010, 05:12 AM

i would like to hear more...how did your appt. go? you may need to go through a few (or more) neurologists before you find one you trust or feel comfortable with. My first one was horrible. second one was good but couldn't help with my other issues (dystonia, myoclonus). went to johns-hopkins movement disorder clinic. they were fascinated with my tectal lipoma, but they don't do anything about them unless they cause trouble. they wanted me to have a local neuro they could work with so on to my fourth neuro, whom i like also, but she doesn't really specialize in movement disorders either, so looking for number five. oh well. she doesn't really care about the lipoma either. i'm pretty sure mine is interfering with my spinal fluid flow so back to johns-hopkins i go. waiting for approval.

Posted by Robert
20 Aug 2010, 11:40 PM

After finding out I have a Lipoma on the brain, I've done a ton of research trying to learn as much as possible. Everything the "Experts" say tell me that this can't be the cause of some of my symptoms such as Fatigue, headaches, depression, among others. However, I've discovered through reading that others with the same Dx have many of the same symptoms. As I have time, I'll try to find some of the resources I've read and add them to the community, but this is merely a hello message. I'll know more when I see my neurologist next week.

Community External News Link
Title Date Link
Community Resources
Title Description Date Link

Clinical Trials


Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

Community Leaders

 

Expert Questions

Ask a question

Community User List

test

I was diagnosed with an Int...

Start a Community


Don't See Your Condition On Rareshare?

Start your own! With a worldwide network of 8,000 users, you won't be the only member of your community for long.

FAQ


Have questions about rareshare?

Visit our Frequently Asked Questions page to find the answers to some of the most commonly asked questions.

Discussion Forum

Just to say hello.

Created by Robert | Last updated 25 Dec 2010, 05:12 AM


Communities

Our Communities

Join Rareshare to meet other people that have been touched by rare diseases. Learn, engage, and grow with our communities.

FIND YOUR COMMUNITY
Physicians

Our Resources

Our rare disease resources include e-books and podcasts

VIEW OUR EBOOKS

LISTEN TO OUR PODCASTS

VIEW OUR GUIDES

Leaders

Our Community Leaders

Community leaders are active users that have been touched by the rare disease that they are a part of. Not only are they there to help facilitate conversations and provide new information that is relevant for the group, but they are there for you and to let you know you have a support system on Rareshare.