Idiopathic Juxtafoveal Macular Telangiectasia is overgrowth and leakage of dilated, twisted, capillaries around the fovea centralis of the retina, leading to distortion, scotomas, and loss of central vision.
Wanted to keep anyone that is following this thread up to date. My wife had another visit with the Dr's at U of Iowa today. Her eyes have stabilized and are where they were (and maybe a little better) during her last visit. The Dr saw some improvement in her images, a few of the small areas of pooling that were still there have cleared up. The only concern since her last visit is the problem she had with a large kidney stone about 6 weeks ago. The Dr's are a little concerned that the kidney stones could be a side effect of her medication. He is going to confer with some other Dr's and let us know. The Dr's are fairly confident with her treatment. So much so, that we don't have another appointment until next March.. (unless she notices a problem) I hope everyone else is doing well.
Just wanted to chime in with a little good news. My wife returned to her optometrist today. (the Dr that first discovered her MacTel last year during a routine eye exam) We wanted to get a better idea if her visual acuity had actually gotten worse since she got her new glasses in December. In my previous post, I mentioned the her last visit at the U of I, left us a little skeptical about how they determined her VA. (they are more concerned about taking photos and such) Anyway, the Dr today was very understanding. After about 20 minutes he was confident that her left eye is still at 20/30 and her right eye is maybe a little better than it was last time 20/50+2. He checked her prescription to see if he could do any more, but he didn't see a need at this time. He also didn't charge us, even though I was prepared to pay the Eye Exam fee. I know, to most people it won't seem like much. But, we had been pretty bummed after her checkup last month. Not sure if it has just leveled off on its own, or if the meds are helping. But, every day that it doesn't get any worse, is a great day in our book.
Hey there Sorry to hear things not too good for u all. I know the answer to ur ex question (run several depts inc opticians) I asked one of the optoms this question and they told me the Mactel won't change the rx at the front of the eye seeing as condition is at back so ur wife shouldn't need to keep changing her glasses. I myself have stopped wearing my glasses tho as they make me diZzy now. I hope u get the answers and assistance u are needing and here's hoping ur wifes vision improves :)
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