We had our visit with the Dr's at Univ of Iowa yesterday. They have a nice facility there and the staff was very friendly and helpful.
My wife had a full workup done again. Her original Dr sent her files to U of I, but never contacted the Dr's over there, even though he stated that he would call or email.
After all of the pictures, 3 separate Dr's confirmed that it is IJT. The pictures they showed me were of much higher resolution than we had seen before, We could see the blood vessels make the right angle path.
The Dr didn't give an exact number, but he stated that they see more IJT patients than most other Dr's since they receive many referrals.
He also stated that they do not recommend Avastin injections for IJT. He stated that they have seen very little, if no effects by their patients in response to the injections. He felt that the risk of infection was not worth the small percentage chance of it helping someone.
He stated that laser surgery is a "no, no" with this condition (his words) He said that the laser could cause worsening conditions and has shown no effects in correcting the problems.
So, his solution was a pill? He put her on Methazolamide tablets for 90 days, At which time we have a return appointment. One of the professors/Drs did a study of 9 patients over a 9 year period with mixed results. Her Dr yesterday, felt there was a 70% chance this could help her visual acuity. I am skeptically optimistic. I was able to find a summary of the study HERE:http://webeye.ophth.uiowa.edu/research-day/item/273
Hopefully they have seenr success from patients not included in this study. By my calculations the 9 patients that did nothing had a 56% chance of their VA worsening. By comparison the pills/drops corrected the Cystoid problems. Unfortunately, that correction only improved VA in 29%. (1 with drops and 1 on pills) The exact same 29% had no change in VA and 43% had a gradual decrease of VA. So, I am not sure where the 70% optimism by the Dr factors in to this. Maybe he is just trying to keep our hopes up.
One other positive note, my wife can finally go back in and get new glasses. Tests yesterday showed that some of the loss of VA over the past 6 months can be corrected with a new glasses prescription. She was still at 20/50 left eye and 20/100 right eye yesterday. They think she should be able to get those down to 20/40 and 20/70 respectively. So, it will make things seem better.
So, what does this all mean. I'm not sure. The staff was very helpful, the Dr's were knowledgeable and were able to explain everything. We are still left in limbo. I am skeptical of the pills, but hopeful.
Has anyone tried these pills (Methazolamide) or the drops (can't recall the name) with any success?
Hope everyone is well and has a great holiday