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Familial Hemiplegic Migraine

What is Familial Hemiplegic Migraine?

 

An description of Familial Hemiplegic Migraine has not been added yet.
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Shower trigger? Created by HemiHead
Last updated 28 Apr 2016, 09:14 AM

Posted by HemiHead
28 Apr 2016, 09:14 AM

I actually found an old article regarding hot baths and cluster headaches. I wonder if the hot baths have the same effects for people with hemiplegic migraines. http://www.m.webmd.com/migraines-headaches/news/19990916/elevated-body-heat-can-cause-cluster-headaches

Posted by HemiHead
28 Apr 2016, 07:30 AM

Hello all. This is my first post. I was wondering if anyone has become triggered when entering the shower? Today was the second time (yesterday being the first) in which my hemiplegic migraine got triggered right when i entered the shower and had the water hit my body. I felt some weird painful sharp pains go to my head, and had a Bell's Palsy effect and painful migraine. Anyone undergo the same? This was the first time this ever happened (triggered in the shower).

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CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

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After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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I am a sufferer of hemiplegic migraines. I am here to hopefully find a haven in which we can all support each other with anything and everything regarding rare illnesses/diseases.

 

 

hemiplegic migraine sufferer for years, just diagnosed
Still not sure what I have yet.
I was dignosed with familial hemipligic migraine nearly 3yrs ago. I was at start having attacks every month which lasted anywhere between a few hrs and a month.

 

It started with sever...

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Shower trigger?

Created by HemiHead | Last updated 28 Apr 2016, 09:14 AM


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