Eagle Syndrome is a rare condition classified by the elongation of the styloid process or calsification of styloid ligaments.
Eagle Syndrome is extremely rare
Eagle Syndrome is extremely rare
I live in North Alabama. I was diagnosed with Eagles about 4 years ago. Mine had calcified and was sharp as a needle. It was causing neck and jaw pain and eventually it started poking me. I was referred to an ENT at UAB in the Kirkland Clinic. He removed my right styloid and tonsil. I have had no more pain once I healed.
Hi Angie. I just found this site and have just been diagnosed. I'm in the southern US. Can't find a surgeon to speak with about helping relieve this pain. What about you?
Hi there, My name is Angie. I've recently been diagnosed with Eagle Syndrome, & would love o meet others who also have it, or have had surgery to correct it. Looking forward to chatting. Cheers
I've also found that eating healthy, & getting daily exercise,9 even if it's just walking) really helps. Drinking lots of water, eating green vegetables, cutting sugar , bread, & margarine out of my diet has helped me to cope better with my ES pain & symptoms.
Hi there. I've had ES for almost 15 years now, although i've only recently been diagnosed with it. I've been on Norspan pain patches for about 8 to 10 years now. I'm on 10 mgs. The patch is effective for 7 days, & then you put a fresh patch on. Patches have helped massively with my ES pain. Occasionally i've forgot to put a new patch on after a week, & the pain has suddenly got worse, & i wonder why... then i realize that i've forgot to put a fresh patch on. I've foud patches to be really good, the only downfall is that they're addictive ( being opoid) I've chose to have surgery & am currently waiting to hear when my operation will be. Heat packs, i've found help with the facial pain & migrain due to ES. I hope i've been able to help you somewhat. Cheers :-)
I was hoping someone would have some kind of home remedy that would help with the discomfort of this problem. I have been applying ice packs to face and neck to try to obtain some relief. Because the styloid process is in such approxsimity to the caroid artery am very leary about having surgery. So much is still unknown about this.
CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.
Enrolling is easy.
After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.
Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.
Visit sanfordresearch.org/CoRDS to enroll.
I have recently been diagnosed with Eagle Syndrome, After almost 15 years of misdiagnosis.
I'm a single mum of 6 , & i live in Victoria Australia.
Start your own! With a worldwide network of 8,000 users, you won't be the only member of your community for long.
Visit our Frequently Asked Questions page to find the answers to some of the most commonly asked questions.
Join Rareshare to meet other people that have been touched by rare diseases. Learn, engage, and grow with our communities.FIND YOUR COMMUNITY
Our rare disease resources include e-books and podcasts
Community leaders are active users that have been touched by the rare disease that they are a part of. Not only are they there to help facilitate conversations and provide new information that is relevant for the group, but they are there for you and to let you know you have a support system on Rareshare.