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What is Dermatomyositis?

Dermatomyositis (DM) is a rare autoimmune connective tissue disorder related to polymyositis. An inflammatory myopathy disease; myopathy is a condition that affects the muscles.  It is characterized by severe muscle inflammation, muscle weakness, and skin changes. Affected individuals with DM often have a pink/purple rash with papules on the knuckles, knees, and elbows. They also have extreme and progressive proximal muscle weakness. DM can also affect the lungs, resulting in pneumonia or interstitial lung disease. Other complications such as high blood pressure and breast or ovarian cancer can occur.


Dermatomyositis (DM) is a rare autoimmune connective tissue disorder related to polymyositis. An inflammatory myopathy disease; myopathy is a condition that affects the muscles.  It is characterized by severe muscle inflammation, muscle weakness, and skin changes. Affected individuals with DM often have a pink/purple rash with papules on the knuckles, knees, and elbows. They also have extreme and progressive proximal muscle weakness. DM can also affect the lungs, resulting in pneumonia or interstitial lung disease. Other complications such as high blood pressure and breast or ovarian cancer can occur.

Acknowledgement of Dermatomyositis has not been added yet.

The annual incidence of DM is estimated to be between 1 to 10 new cases per one million. DM can occur at any age, but it generally occurs in adulthood. It may occur in children in some cases. It is two times more common in women as men. The prevalence is reported to be three times higher in African-Americans than Caucasians in the United States.

Synonyms for Dermatomyositis has not been added yet.

The cause is unknown. Some research suggests that the inflammatory response can be triggered by an infection with toxoplasma and/or borrelia species. It can also be due to the body’s autoimmune response.

Common signs and symptoms of DM are pink/purple rash around the face, especially on the eyelids, papules over the knuckles, knees, and elbows (Gottron’s papules), red pigmented skin visually similar to sun damage (poikiloderma), and dilated small blood vessels can form warts (periungual telangiectasias).


Some rare symptoms are the inflammation of the blood vessels (vasculitis), lesions on the skin (ulcerations), and calcium clusters and deposits in the tissue (calcinosis )..


All affected individuals develop symmetrical muscle weakness that affect mobility and activity, which progressively worsen within weeks or months. Complications with other systems in the body can occur, such as vascular (blood vessels), pulmonary (lung), gastrointestinal (gut), and cardiac (heart) issues. Lung disease such as aspiration pneumonia or interstitial lung disease with pulmonary arterial hypertension can occur. Dysphagia or the difficulty of swallowing can potentially lead to weight loss and malnutrition. Heart issues that can occur are irregular heart rhythm (sinus tachycardia), improper filling of blood in the heart (diastolic dysfunction), and inflammation of the heart wall (myocarditis).

Name Description
Photosensitive erythroedema Photosensitive erythroedema on exposed areas of the skin. Skin rash usually present on the face, back of the shoulders, upper chest, hands and joints
Muscle weakness Muscle weakness
Arthralgias Joint pain
Palpitations The sensation of the heart racing, fluttering or pounding strongly in the chest or the carotid arteries
Difficulty swallowing Difficulty swallowing
Myalgia Myalgia is muscle pain
Gottron's papules Small vesicles along the sides of the fingers
Alopecia Hair loss, either localised and concentrated, and/or generalised and diffuse.
Renaud's Syndrome Acute constrictive reaction of blood vessels of the extremities in response to cold, causing hypoxia, ischaemia and utimately gangrene if severe and untreated.
Calcinosis/Dystrophic Calcification Deposits of calcium phosphate with a very thickly paste-like or snow-like texture in the tissues, up to several cm breadth. These may remain inactive, or may ulcerate and be resistant to healing.

The onset of dermatomyositis is often acute, but may be progressive. Dermatomyositis is diagnosed based on characteristic skin findings, such as rash patterns on the skin and/or proximal muscle weakness. Differential diagnosis include late onset muscular dystrophy, skin abnormalities (inflammations, rash, etc.), adult-onset nemaline myopathy (severe neuromuscular disorder causing proximal muscle weakness), lesions over bony areas of the body, constant inflammation and scaly patches on the skin (lichen planus), and rash caused by sun exposure or photosensitivity (polymorphous light eruption).  

Testing for proximal muscle weakness and inspecting the skin can aid in diagnosis. Testing for high levels of muscle enzyme serum creatinine kinase, aldolase) and observing myopathic findings on an electromyography (EMG) can help as well. A muscle biopsy can test for inflammatory infiltrates or immune cells near the blood vessels. Testing for these antibodies in the blood can confirm diagnosis: anti-Mi-1, anti-TIF1-gamma, and anti-MDA5.

There is no cure for dermatomyositis only symptom management. Symptom management therapies include medication, physical therapy, exercise, heat therapy, orthotics, and rest.


The primary symptoms to target are inflammation in the body and returning or preserving the abilities of the muscles. Treatment initially begins with a high-dose of steroids and over time the dosage is tapered down to  a maintenance dose. Immunosuppressive drugs such as methotrexate, azathioprine, mycophenolate mofetil can be used in combination with steroids. In extremely severe cases, intravenous immunoglobulin (IVIG) or IV methylprednisolone is used.

For muscular rehabilitation, physical therapy is recommended.

There are many side effects and risks associated with the above drugs, especially the long term use of steroids. It is best to review and learn about the side effects with the doctor.

The prognosis can be good or poor, depending on a variety of factors. Symptom management is key. The individual response to treatment depends on the severity of the condition. Other comorbidities or health conditions can affect the prognosis.

Routine cancer screenings are recommended to all affected individuals.


Affected individuals must do their best to avoid direct UV light and use high-SPF sunscreen.

Name Description
Investigate All Possible Drug Side Effects Carefully investigate the possible side-effects of ANY drug you are prescribed. You cannot rely on doctors to adequately inform you. Then any deleterious effects can be assessed for their rate of incidence and weighed against the severity of the symptoms.
Rash Created by jramierez3
Last updated 16 Jul 2020, 03:00 PM

Posted by jramierez3
16 Jul 2020, 03:00 PM


I have had DM for the past 10 years. I been able to find out what things work and what things dont work with DM. One thing im having trouble with is my rash in my face. The rash is on the forehead and on the cheeks. Sometimes I put tea tree oil overnight and the next day they are dry. Also there this prescribed cream which has some effect. There are days that I have no rash whatsoever. What have you guys done to help aid on diminishing the rash or making it better? Do you guys think it can be aggravated with certain foods? 

Thank you

Lakota West softball senior Sammie Fish raising awareness for her rare autoimmune disease Created by shannon.ashoori
Last updated 23 Jun 2020, 10:35 PM

Posted by shannon.ashoori
23 Jun 2020, 10:35 PM

Read about Sammie Fish’s story here. After being diagnosed with Juvenile Dermatomyositis (JDM), Sammie’s softball team dedicated a JV and varsity game to fighting JDM and donated all funds to the Cure JM Foundation.

Alternative Treatment Option Created by deanna
Last updated 30 Dec 2015, 04:43 AM

Posted by deanna
30 Dec 2015, 04:43 AM

Hello all, I just wanted to post that my DM activity drastically decreased to the point of near remission by going on a vegan diet and detoxing my life. It's a huge topic and lots to discuss, but it was the miracle of my life, and I wanted to share in case you are interested in seeing how it improves your life. Almost 5 years now of feeling great - unfortunately my skin rash only calmed down and the rash is still here, but other than that my health is great. Flexibility and strength is normal. If I were to eat a burger, the next day I would for sure flare up - so indeed the diet is controlling the majority of my disease, or at least activating it. I'd love to answer any questions. I mainly just wanted people to know in case they wanted to try it out. I was at my wits end when I tried going on a whole foods diet. It took a week to notice my disease was practically gone. Wishing you all the best, Deanna

fever Created by Berly
Last updated 4 Apr 2011, 09:25 PM

Posted by human7777
4 Apr 2011, 09:25 PM

I think the tingling is a DM thing.

Posted by christy1115
30 Mar 2011, 12:28 AM

7777, I do still get the rough bumps on my knuckles (grottons papules). And sometimes the skin around my fingernails is so sensitive and hurts so bad to the touch,even just typing. I have noticed lately that I have had tingling in my fingers and hands sometimes, just within the last couple of months. So do you think that is a dermatomyositis thing? It doesn't happen all the time, but seems to come out nowhere when it does happen. People look at me really weird when I have gotten really hot because I am so oddly red. I have to fan myself a lot too. It's kind of become my trademark at work. I try to laugh at myself!

Posted by human7777
28 Mar 2011, 08:25 PM

Christy, My hands do the get rough bumps and my finger tips split. My hands ache and sometimes they feel ice cold and tingly. The rest of me so far is pretty good. The throat thing is there usually when I get tired. Its my indicater that I need to rest. Heat is horrible, no other words can describe it.

View Full Thread (6 more posts)
Mom with DM Created by cookieria
Last updated 25 Feb 2011, 03:21 AM

Posted by Berly
25 Feb 2011, 03:21 AM

Hi Ria, I am on Immunogobulin, I have been on it for 3 years. I have a infusion nurse come to my house every 3 weeks, it takes 2 days to infuse. It has really helped me. My insurance covers the cost. I highly recommend it. Good luck to you and your mom. Kim

Posted by cookieria
20 Aug 2009, 08:35 AM

Hi guys.. thanks for thr reply. Its really fustrating because DM is such a rare disease and even doctors are not familiar with it. She was initially diagnosed with allergies and had allergy patch test done. And few months she was on antihistamine and steroids. By the time she has gotten worst the doctor was already looking into DM. But it was to late already she cannot move anymore. She is on her 3rd day of Immunoglobulin she seems responding to it. Last sunday we almost lost her but now we are able to talk to her. But she's still in the hospital and she is tube feeding (NGT). Well I do hope she's going to get better. I really appreciate knowing you guys it gives me hope that my mom will get better. I do hope both of you will have worry free days. I hope you could update me in case you find some miracle drug in your country or any suggestions to make my mom feel comfortable.

Posted by christy1115
20 Aug 2009, 03:11 AM

Hi Ria, I was dx'ed with dm last year after many years of health problems, last year the problems got a lot worse. I have been on prednisone and methotrexate. I am starting to finally get better. I have never had the immunoglobulin treatment but have heard very good things about it. You can also check out another website for DM. It is I'm pretty sure that's the correct address. There are a lot of people who have had the IVIG on that website and share their experiences with this situation. I pray your mother gets well, and you are holding up as well.

View Full Thread (2 more posts)
Myositis Awareness Walk Created by myonurse
Last updated 4 Oct 2010, 04:49 PM

Posted by myonurse
4 Oct 2010, 04:49 PM

Hello Everyone, Anyone living in the Maryland, DC area I would just like to invite you to the Myositis Awareness Walk this Saturday, October 9th at Centennial Park in Columbia Maryland. The walk will begin at 8am. Hope to see you there.

What is this stuff? Created by rachel1955
Last updated 14 Jun 2010, 12:22 AM

Posted by christy1115
14 Jun 2010, 12:22 AM

Hi Rachel, I have only had the skin problems so far, no serious muscle involvement yet. I don't want the muscle issues either. My skin was getting better and has recently started to get red again. My fingernails have hurt very badly also. I've also had issues with breathing, a pulmonologist told me it could be from the prednisone and the weight gain from the prednisone. I have been in a flare since May 2008. It has gotten about 80 to 90% better, but gets worse when I become very active. I get exhausted very easy but can manage. I thought I may be able to get off all my meds this year but that was wishful thinking. I was off work for 9 months in 2008 through into 2009. I have been back to work for almost a year now and am managing. I tend to sleep a lot. My advice is to listen to your body and take a break when you need to. Good luck and God bless!

Posted by rachel1955
21 May 2010, 12:16 AM

I am the newest DM here. I don't have the muscle thing yet and never hope to have it, But I do have such sun sensitivity that I can not really go out side during the day. It feel like the sun is eating up my nose.ears, throat and chest. Its hard to breathe, not quite a shortness of breath maybe a burning heavyness. My finger tips are so sore that it hurts to type. finding a support group has been hard since practically none exist. I hope to find support here.

Lotions for skin rash Created by NuttySquirrel
Last updated 18 Feb 2009, 05:37 AM

Posted by NuttySquirrel
18 Feb 2009, 05:37 AM

Thank you! I've heard of Eucerin and Cetaphil--I've used both at various points several years ago. I'll try them again and see how they work. Yeah, I totally understand being annoyed with the redness. One of my cheeks was fine, while the other had an omnipresent flushed look and rough-looking skin. Both the color and texture have evened out since I started taking Plaquenil. Now I'm focusing on finding a moisturizer that'll help the dry skin without irritating the DM-affected cheek. Thanks again, Christy, and I wish you good luck as well!

Posted by christy1115
18 Feb 2009, 05:10 AM

Hi Laura! I have had luck with fluocinonide 0.05% cream for the red rashes on my body. I use it when my skin starts feeling raw, about every 3 to 4 weeks. For my face I have not had a lot of luck. I have used desonide cream, but it didn't really help, plus it can cause premature wrinkles and thin your skin, and I don't want any part of that! I have also used Verdeso foam for my face, and it did absolutely nothing for me. But they may work well for you. I did just get some Bare Minerals powder that has real gold in it. I read that some autoimmune diseases, like rheumatoid arthritis, are treated with a gold derived medication called aurolate. It's supposed to reduce inflammation. So when I saw this gold Bare Minerals powder I thought I would try it, maybe it would help with the redness of my face. I have only used it three times, and my face still has the typical heliotrope rash, no change at all. The color of my face ranges from a pale reddish purple to a bright tomato red, which I'm sure your familiar with. I have had it since May 2008, and it just won't go away. It has gotten better, but it's stubborn. My dermatologist said Eucerin, Cetophil or Aquafor moisturizer lotion is ok to use for moisturization. I have more problems with the color of the rash than the dry skin. My skin does get dry, and it will peel probably once a month, but is has the various shades of red all the time. Let us know if you do find anything that works for you! Good luck!

Posted by NuttySquirrel
18 Feb 2009, 03:01 AM

Hi all, My name is Laura Conway, and I'm a Chicago native. I was actually diagnosed with the juvenile form of DM several years ago. I was wondering if you have any recommendations for a non-alcohol based skin moisturizer? I have a mild rash on the face, but am prone to dry skin anyway. Thanks!

Hi Joy! Created by christy1115
Last updated 17 Feb 2009, 04:47 AM

Posted by christy1115
17 Feb 2009, 04:47 AM

Hi! My mom has said the same thing about changing the way I eat. I would say out of all my vices--alcohol, smoking (quit last year), shopping, and food--it is the food vice that I have the least control over. I have always had a love/hate relationship with it. It's like an obsession with me. I, too am a chocoholic. My husband has been saying we need to start eating healthier too. It would definately be a lifestyle change, and I have been thinking of doing it. I've thought about chemical exposures also causing the autoimmune diseases, I'm a chemist by profession, so I'm around them all the time. But I have been having health problems with my skin and joints since I was 18. Almost all the women in my famiily have hypthyroidism, and my mom has fibromyalgia. I also have Hashimoto's thyroidism, and a blood clotting disorder. I think I get diagnosed with a new disorder or disease every year. My body is just the gift that keeps on giving! : )With every pregnancy except the first I have taken injections of Lovenox, a blood thinner. When I am pregnant, I eat very healhy, and was always able to quit smoking asap. Of course after the miscarraiges I would start smoking straight away (stress). I don't know if we will try again or not. We've also thought about adoption, but right now I feel so scarred from it all I just can't focus on having kids. What's weird is that I didn't take any meds at all when I was pregnant with my son, and I was able to carry him for 7 months. Now I can't carry past 11 weeks. I think I had age on my side, I was 25/26 then. I did not know Australia was in such a drought. I am a big animal lover too. It's awsome that you are giving them water. That koala bear that the fireman found is all over the news here. I will bring up the food allergy thing to my doctor. I would love for all this mess to go away. For the past week my face has not been as red as usual. I'm hoping the methotrexate is finally starting to work. I'll defiately find out next month when I retun to work. Have you had any luck with finding out about your heart palpitations? I do get them occasionally, and I hate when it happens. It's nerve racking. Did you like living in Ireland? My great great grandparents were from there. I have always wanted to trace my family tree. It was good to hear from you again. Talk to you soon.

Posted by fleeting_joy
14 Feb 2009, 06:42 PM

Hello Christy dear, Thank you very very much for your kind hope and prayer! I’m not directly affected by the fires, and no-one I know has been either. But something strange; I feel I am part of a huge tide of pain and compassion that has risen across this whole country. I have been trying over this last month to help the wild animals who are dying of thirst as week after week go by with almost no rain. The grass is dying and the leaves are falling from the trees as if it were autumn. I was told that the first day of the fires here in Melbourne it was 48 degrees. So I am putting out water around the two parks I walk in with my dog, for the animals to drink. Please forgive my tardy reply. Reading your last post also I felt a lot of sadness for you. I am sorry that you have had such difficulties with having a baby! I really hope that this will do a complete about face for you and that you’ll be a mum soon. Reading about lupus, I see that on at least one site they say there’s no reason you shouldn’t conceive. I wonder what has been going on with that. I read something encouraging on an Australia site that causes for miscarriage can include “…autoimmune diseases (for example Lupus), blood clotting disorders, diabetes, hormonal imbalances, kidney disease or low thyroid function. These may be the reasons for 'recurrent' miscarriages, meaning 3 or more consecutive miscarriages. However, when some of these conditions are treated or well controlled, the chances of miscarriage will tend to be no greater than any other healthy woman.” It also says on the site that “Women who experience one miscarriage are not more likely to experience another (unless they have a medical condition that is likely to cause recurrent miscarriages). Up to 97% of women who experience one miscarriage will go on to have a healthy baby with a subsequent pregnancy and up to 75% of women who have had 3 or more miscarriages will have a subsequent normal pregnancy and baby.” However, the sources for this info are not cited. Nor is the author credited on the page I looked at. I don’t wish to raise this up when you are putting it to rest for now. Of course you know you own condition best, and the pros and cons. You know, the only differences I could see between Lupus and DM in my very brief skim of descriptions is the mouth and nose sores and chest pain due to pericarditis. I do not get the sores, and the chest pain I occasionally have is not beneath the sternum but behind it, and up towards the left. It was this pain that sent me to the ED last time (after trying to ignore weeks of palpitations that increasingly came in clumps), to get looked at, hoping it wasn’t the beginning of some atrial fibrillation, which my dad has. Heart disease runs in the family. It’s so boring grr. I look at my dog’s clear eyes and expression of total enthusiasm and think it’s better to be without these stupid problems. Which should earn me a phd for stating the @%&* obvious. I have been looking at some of the given causes for Lupus, which look of course a lot like the tentatively suggested causes for DM. They mention UV exposure, diet, hormones. I’m pretty careful of my diet except for the chocoholism, and I minimise my time in the sun- which action has its own risk. And I’m concerned about my hormones because after years of dysmenorrhoea it was found I’ve got uterine fibroids. GRRR. But I’m wondering…I know most lupus sufferers are women of reproductive age, and that we can’t do much about, but what about the UV and the diet? Would it be worth having a bit of an experiment with those? When I had the initial joint pain I mentioned before, the GP had me tested for a few common allergies, and egg and dust mites came up positive. So I naturally thought that if I eliminated these things from my environment I’d get completely better. And maybe this thinking was right. I think it’s well-worth eliminating all excessively processed foods from the diet; no ready-made stuff, and just work with raw materials; veges/fruit, wholegrain products, as far as possible not just concentrating on one single type such as mono-crop mass-produced wheat, trying instead to take in a variety of seeds and grains. (I admit to being in the middle of a packet of twisties as I type :-S but it’s a blip- usually I’m an abstainer from that kind of junk). It’s just habit and habit can be broken. But I have a feeling that there is something environmental that contributes to this/these that we have. The minimal chemicals around the house I think is important too. I was fine before I went to live in ireland for 2 years in the late 80s. there, I spent time on farms, working with vegetable crops and chickens. I once had a pretty dramatic exposure to an organo-phosphate in the form of Tixol. Within a minute of dipping my dogs in this stuff I had a truly violent headache, double vision and was on my hands and knees in the field being sick. Tixol was withdrawn from use in 2000/2001. I wonder now whether my DM prob could possibly have started with something like that… What if you try going organic and fresh food and no chemicals? And see what happens?

Posted by christy1115
12 Feb 2009, 05:05 AM

Hi Joy, I hope you or your loved ones haven't been affected by the fires going on down in Australia. I'm praying for you if so.

View Full Thread (5 more posts)
Hi Joy! Created by christy1115
Last updated 5 Feb 2009, 06:10 AM

Posted by fleeting_joy
5 Feb 2009, 05:57 AM

hi christy, thanks for writing back :-) what a great site, although I wish they hadn't moderated out my treatment summary. i can really relate to your feeling of relief at finally getting diagnosed! when i first had all the loss of flexibility, the weakness and pain in my joints and muscles, my family and partner told me a lot of things that were NOT "wow, that sounds weird and bad! go and see a doctor and if he can't work it out, see another until you find one who can work out what is wrong, because it's obvious something is wrong!" i am still angry after all these years that even afflicted as i was with that ridiculous inflamed huge red rash on my mug, i wasn't taken seriously by those close to me. but, then, they also didn't heed the fact that their dog was cold and tired and had dry crusty skin and a strange expression from all the oedema around her face. i had it looked into and she has hypothyroidism. now, the uphill battle is the swallowing thing. it makes me feel as if i'm about to choke. my throat is so weak that i can't easily swallow away the normal mucus that everyone swallows without thinking. it takes me several tries to rid myself of whatever is there, and sometimes i don't manage. that's where the choking feeling comes in. sometimes drinking a little water helps. i did a barium swallow x-ray and it seems i have gastric reflux, which is a bit of a drag from the prognosis point of view. i hope it won't get very severe. i don't know whether the reflux is a function of the 'deglutition (swallowing) disorders' they talk about. i have no doctor here who recognises swallowing problems to be an aspect of dermatomyositis! almost none of them even know what dermatomyositis is. i had a GP who was clued-in; she was the first to tell me she had any idea at all what my rash was. previously i had been told it was seborrhoeic dermatitis, or quite openly 'i have no idea whatsover'. this good GP (who has unfortunately moved away) referred me straight away to a rheumatologist on the possibility i might have lupus, and she's the one who set me at ease about the huge red burn-like mark on my hip and the calcium lumps in my muscles. i really wish i had a reliable doctor, because i am afraid of this. anyway it's good that you got in touch and that you understand when so many medical people just don't, the amazing tiredness you feel with this condition, and the weakness. to this day my parents have no idea what it is i actually have. i'm glad i don't see much of them.

Posted by christy1115
5 Feb 2009, 05:11 AM

I'm glad you posted a message! I was dx'ed wth Lupus and Dermatomyositis sine myositis in 2008, but have been having problems for years. I have had mechanic hands since I was 18 years old, now am 36. No doctor ever recognized this as a DM symptom. I have had numerous miscarraiges (lupus), horrible skin for years. I was finally able to get dx'd because I got the heliotrope rash on my face, and itchy rashes and sores all over my body. They did a skin biopsy to dx. Even though you don't want to have diseases, it was actually a relief to find out. I was tired of not knowing why. I have had some muscle soarness in my shoulders and thighs. I have had a horse voice for no reason also. I get jittery sometimes, even when I haven't been on steriods. I get exhausted easily. The rash has made my body a furnace. My heart has also been beating irregularly so much it feels like its hitting my esophogas. It scares me and makes me feel like I could throw up. My doc says it could be the prednisone, but I also have Hashimoto's thyroiditis which can affect the heart. Who knows?? So, I have been in a flare since May 2008. i had to take sick leave in September because my job is very physical and is in a hot dusty environment. My skin couldn't handle it. i started making mistakes I normally wouldn't make, or forgetting things. I started running low grade fevers, and was just exhausted. I'm now on prednisone and methotrexate. It has gotten better, but not all the way. I am going to try to go back to work in March. I'm nervous about that, because I still have a lot of bad days. But i love my job and don't want to take a chance of losing it. I think its great to share experiences and have someone o talk to. There is also another website for myositis, it is It was nice to hear about your experience, keep in touch!

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64 yo female with PL7 antisynthetase dermatomyositis interstitial lung disease. 

I was recently diagnosed with dermatomyositis and interstitial lung disease. I want to learn more about the diseases and ways to be proactive!
I have a sister with a skin disorder
Previously very healthy person before being diagnosed with dermatomyositis, and want to chat with someone who has same issues
New here diagnosed with DM in Feb 2014.


Nothing to say.


I am a 49 year od female, married with 6 children between my husband and I, and 4 grand children. I love life, and have a great passion for it. I've always been very active, type A...
I am working through this. Now let me tell my story:



When I was 10, early 2000, I got a vaccination for hepatitis so I could get into a art magnet school. I needed to get these...
I was diagnoised with Lupus in 04 and Dermatomyositis in 06. I have taken everything on the market to treat the symptoms and try to control these diseases. I started taking IVIG Therapy one month...
56 year old male diagnosed in mid-2006. I have 4 kids, 2&2, from 21-27.
I have an autoimmune disease for 20 years. I was first diagnosed with Lupus and treated for that for many years and later was told I had Dermatomyositis. That was confirmed by a muscle biopsy. Its...
I am married to my mulligan. We are avid golfers and RVers.


We have 3 children between us. We also have 4 grandchildren between us.


I am learning to play Mah Jong. I love it.


I am...
dermatomyositis for 9 years
Mom of five..


Diagnosed with DM in 2002.


other dx.


Rheum. arthritis


Rheynodes (sp)




Interstitial Lung Disease


Ulcerative Colitis



Diagnosed JO-1 positive in Sept. 2008



I had quit my job in spring 2007 to go back to school and get my degree in Interior Design. I have been sick for a year now. I was in the...

Diagnosed with dermatomyositis in 2001. Suffering from it since 10 years before that. Latest problem over the last few years is difficulty swallowing accompanied by a sense of swelling and...
Dx'd with dermatomyositis sine myositis in Oct. '08. Have experienced joint pain and severe skin rash. No muscular involvement (yet?). Also dx'ed with Lupus in August '08.

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Created by jramierez3 | Last updated 16 Jul 2020, 03:00 PM

Alternative Treatment Option

Created by deanna | Last updated 30 Dec 2015, 04:43 AM


Created by Berly | Last updated 4 Apr 2011, 09:25 PM

Mom with DM

Created by cookieria | Last updated 25 Feb 2011, 03:21 AM

Myositis Awareness Walk

Created by myonurse | Last updated 4 Oct 2010, 04:49 PM

What is this stuff?

Created by rachel1955 | Last updated 14 Jun 2010, 12:22 AM

Lotions for skin rash

Created by NuttySquirrel | Last updated 18 Feb 2009, 05:37 AM

Hi Joy!

Created by christy1115 | Last updated 17 Feb 2009, 04:47 AM

Hi Joy!

Created by christy1115 | Last updated 5 Feb 2009, 06:10 AM


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Our rare disease resources include e-books and podcasts





Our Community Leaders

Community leaders are active users that have been touched by the rare disease that they are a part of. Not only are they there to help facilitate conversations and provide new information that is relevant for the group, but they are there for you and to let you know you have a support system on Rareshare.