Cyclic Neutropenia is a rare form of neutropenia.
@ton76 looking forward to it. ill have a think about what i know and see if it could be relevant to everyone! cheers!
@sebw I still check this site often hoping for new info to be posted.
hi im 22 and was diagnosed 1.5 yrs ago. does anyone still read these? I would like to talk
Hey guys, im new to CN, since its guessed there's only 7,300 of us who have this, I would like to meet some of you! pop me a message anytime Seb
My son has and it came back negative. Not exactly sure what that means. My daughter has been diagnosed w/cyclic neutropenia and she is almost 5yrs - found it when she was 9 mos.. My youngest, 2 1/2 is also diagnosed w/it. His cycle isn't as predictable as my daughters. But both are very mild as they don't develop the symptoms that I read about. Have you been tested for the gene?
wondered if anyone has been tested for the Cyclic Gene?
about once a month ive been getting this horrible abdominal pain, the last few years I never told anyone about it. but recently Ive read about some serious intestinal issues with cyclic neutropenia, and im a bit worried. especially with my recent shut down of my intestines a few months ago.
yeah, me too. i was constantly sick and i knew something was wrong with me but everyone else thought i was a hypochondriac...turns out i wasn't. they tracked my blood counts for a while too to see where my cycle was and then they gave me the shots. but the shots are definitely worth it because they are much better than being sick all the time.
I haven't started getting the shots, I am currently on the "tracking" plan.... just seeing what my cycle is. it is really aggravating, my entire life i have been saying "there is somethign wrong with me, I am always sick" when i was a kid I almost died from a bacterial infection. This wasn't discovered until at 27, my digestive tract failed, and a few weeks later my dr decided to do a cbc. after 10 random tests by platelets and white count are all over the place....up and down!
i've heard that people taking the gcsf shots can get pretty fatigued from it. are you taking them? as for me, every time i take an injection i get really sick for about a day...headache, severe nausea, bone pain, etc. it didn't start until a while after i began the shots but my doctor doesn't know what it's from.
Publication date: 23 Jun 2020
Community: Cyclic Neutropenia
RareShare has recently become aware of a free genetic screening opportunity for neutropenia patients.
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