I know exactly how you feel. I am 20 and was diagnosed when I was 16. Still, after these few years, I hate giving myself the shots and I still get sick sometimes. I get awful mouth sores, infections on my body, just a general tired feeling...not only that, but I also feel like I can't do anything else when I'm sick. I feel like it's so embarrassing when I get sick like that, even though I know it's not my fault and it feels very lonely because there are so few people that have this disorder. How long have you been taking the shots? Maybe your symptoms will get better once you have been taking them for a while...mine seem to fluctuate, sometimes the shot even makes me feel sick for a day or so. I know it's a very helpless feeling when you feel like there's nothing you can do to stop your blood counts from changing.