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Axenfeld-Rieger Syndrome

What is Axenfeld-Rieger Syndrome ?

Axenfeld-Rieger Syndrome is a rare disorder of the eyes and teeth.

 

Axenfeld-Rieger Syndrome is a rare disorder of the eyes and teeth.
Acknowledgement of Axenfeld-Rieger Syndrome has not been added yet.
Prevalence Information of Axenfeld-Rieger Syndrome has not been added yet.
Synonyms for Axenfeld-Rieger Syndrome has not been added yet.
Cause of Axenfeld-Rieger Syndrome has not been added yet.
Symptoms for Axenfeld-Rieger Syndrome has not been added yet.
Diagnosis of Axenfeld-Rieger Syndrome has not been added yet.
Diagnostic tests of Axenfeld-Rieger Syndrome has not been added yet
Treatments of Axenfeld-Rieger Syndrome has not been added yet.
Prognosis of Axenfeld-Rieger Syndrome has not been added yet.
Tips or Suggestions of Axenfeld-Rieger Syndrome has not been added yet.
References of Axenfeld-Rieger Syndrome has not been added yet.
riegers Created by mickeykostelnik
Last updated 27 Feb 2015, 07:36 PM

Posted by Karenlgibbs
27 Feb 2015, 07:36 PM

My 16 year old son was diagnosed when he was 13 with the Rieger anomaly. He gets his pressure checked every 6 months and has a visual field test annually. He sees his ophthalmologist annually. So far he doesn't have Glaucoma. And, thankfully, no other signs or symptoms somfar. Glad to have founf this group today as nobody seems to know anything about Axenfeld-Rieger.

Posted by Ffamily2400
11 Sep 2013, 09:31 PM

Hi Eviejo2004! It's extremely difficult to find individuals. I am from the US in the state of Florida. Would love to hear from your experiences here's my email elizabethgonzalo@gmail.com My 6 year old daughter doesn't have her front teeth either. She's been losing her lower baby teeth. Doctors have told us that her top front teeth just aren't present. She's doing well at school she's currently in the 1st grade and still gets checked out by her cardiologist and ophthalmologist.

Posted by Eviejo2004
11 Sep 2013, 09:11 PM

Hi guys!!! Finally I've found a site for Reigers. My 8 year old daughter was diagnosed with the syndrome at 6 weeks old. She doing ok. No front teeth and the some of her adult teeth are a bit "peggy". She wears glasses and has regular pressure checks. We have just been referred for heart scans, ECGs etc to see of there's any underlying heart probs, but fingers crossed, none as yet. She's struggling a little at school with her reading n writing but her memory n knowledge are second to none!!! I'd love to hear more from you all as in the UK there's nothing for us parents of children with Reigers. Hope to hear from you soon xxxx

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Diagnosis Created by Ffamily2400
Last updated 30 Dec 2009, 03:06 PM

Posted by Ffamily2400
30 Dec 2009, 03:06 PM

My daughter has been clinically diagnosed with this syndrome. She has all the characteristic mentioned. She will be turning 3 in a few days & she's missing her 4 front teeth & was born with ompholocele which required surgery when she was born. I would really appreciate any input on families that are or know anyone that experienced the samething. Thanks

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riegers

Created by mickeykostelnik | Last updated 27 Feb 2015, 07:36 PM

Diagnosis

Created by Ffamily2400 | Last updated 30 Dec 2009, 03:06 PM


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