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Ffamily2400 Message
30 Dec 2009, 03:06 PM

My daughter has been clinically diagnosed with this syndrome. She has all the characteristic mentioned. She will be turning 3 in a few days & she's missing her 4 front teeth & was born with ompholocele which required surgery when she was born. I would really appreciate any input on families that are or know anyone that experienced the samething. Thanks