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Angioedema

What is Angioedema?

Angioedema is a rare disorder characterized by rapid swelling of the dermis, subcutaneous tissue, mucosa and submucosal tissues.

 

Angioedema is a rare disorder characterized by rapid swelling of the dermis, subcutaneous tissue, mucosa and submucosal tissues.
Acknowledgement of Angioedema has not been added yet.
1.0http://www.orpha.net
Synonyms for Angioedema has not been added yet.
Cause of Angioedema has not been added yet.
Symptoms for Angioedema has not been added yet.
Diagnosis of Angioedema has not been added yet.
Diagnostic tests of Angioedema has not been added yet
Treatments of Angioedema has not been added yet.
Prognosis of Angioedema has not been added yet.
Tips or Suggestions of Angioedema has not been added yet.
References of Angioedema has not been added yet.
HAE Documentary Created by Eric
Last updated 18 Jul 2013, 04:02 PM

Posted by LaurenC
18 Jul 2013, 04:02 PM

How did you all go about getting a diagnosis? My doctors just don't seem interested

Posted by msdarlin67
19 Jul 2012, 07:53 AM

http://www.swellmovie.com/

Posted by scruton2
29 Mar 2012, 08:22 PM

I'm HAE III, subtyped as post menopause exacerbated. UGH. It got so much worse after menopause. I now have weekly abdominal attacks, have gone through millions of dollars worth of special medications, ER visits, diagnostics, etc. Am currently using icatibant/Firazyr when the attacks start. It's helping a lot. No more pain meds. Fingers crossed that it keeps working. Also have Kalbitor/Ecallentide as a rescuer med too, but it cannot be self-administered, and so far the Firazyr, a Bradykinin inhibitor seems to be working better. No side effects of being really tired after dosing. Thank God I have a pretty good insurance plan.

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HAEA

The US Hereditary Angioedema Association provides HAE patients and their families with a support network and a wide range of services including physician referrals, and individualized patient support.

03/20/2017

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Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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HAE Documentary

Created by Eric | Last updated 18 Jul 2013, 04:02 PM


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