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HAE Documentary

Eric Message
1 Jun 2011, 06:29 PM

Swell is a documentary film that showcases the lives of people suffering from a rare, genetic disorder, Hereditary Angioedema (HAE). For more information on HAE, visit the U.S. HAE Association’s website at:
BPerry7 Message
24 Oct 2011, 09:25 PM

Where can I find the documentary "Swell"?
BPerry7 Message
24 Oct 2011, 09:26 PM

Is there anyone in this group who has been diagnosed with Acquired Angioedema?
scruton2 Message
29 Mar 2012, 08:22 PM

I'm HAE III, subtyped as post menopause exacerbated. UGH. It got so much worse after menopause. I now have weekly abdominal attacks, have gone through millions of dollars worth of special medications, ER visits, diagnostics, etc. Am currently using icatibant/Firazyr when the attacks start. It's helping a lot. No more pain meds. Fingers crossed that it keeps working. Also have Kalbitor/Ecallentide as a rescuer med too, but it cannot be self-administered, and so far the Firazyr, a Bradykinin inhibitor seems to be working better. No side effects of being really tired after dosing. Thank God I have a pretty good insurance plan.
msdarlin67 Message
19 Jul 2012, 07:53 AM
LaurenC Message
18 Jul 2013, 04:02 PM

How did you all go about getting a diagnosis? My doctors just don't seem interested