Cookies help us deliver our services. By using our services, you agree to our use of cookies. Learn more
You need to login or sign up before continuing.

HAE Documentary

Eric Message
1 Jun 2011, 06:29 PM

Swell is a documentary film that showcases the lives of people suffering from a rare, genetic disorder, Hereditary Angioedema (HAE). For more information on HAE, visit the U.S. HAE Association’s website at: www.haea.org
BPerry7 Message
24 Oct 2011, 09:25 PM

Where can I find the documentary "Swell"?
BPerry7 Message
24 Oct 2011, 09:26 PM

Is there anyone in this group who has been diagnosed with Acquired Angioedema?
scruton2 Message
29 Mar 2012, 08:22 PM

I'm HAE III, subtyped as post menopause exacerbated. UGH. It got so much worse after menopause. I now have weekly abdominal attacks, have gone through millions of dollars worth of special medications, ER visits, diagnostics, etc. Am currently using icatibant/Firazyr when the attacks start. It's helping a lot. No more pain meds. Fingers crossed that it keeps working. Also have Kalbitor/Ecallentide as a rescuer med too, but it cannot be self-administered, and so far the Firazyr, a Bradykinin inhibitor seems to be working better. No side effects of being really tired after dosing. Thank God I have a pretty good insurance plan.
msdarlin67 Message
19 Jul 2012, 07:53 AM

http://www.swellmovie.com/
LaurenC Message
18 Jul 2013, 04:02 PM

How did you all go about getting a diagnosis? My doctors just don't seem interested