Addison's Disease is a rare endocrine disorder in which the adrenal gland produces insufficient amounts of steroid hormones.
|Low blood pressure||Low blood pressure|
|Loss of consciousness||Loss of consciousness|
|Hyponatraemia||low blood sodium levels|
|Skin discoloration||Skin darkening around the joints, back and gums.|
Just got secondary or pituitary Addisons diagnosis. Anyone else have that form? Thank you.
Just thought I'd ask if people could share their own experiences. I've just turned 22 and for over a year I've been developing vitiligo, strangely it's been on my nipples. They have always been quite large and very dark and they are noticeably white in patches now, has anyone had this? Also, stupidly for a while now (years) I have been under-dosing on my medication and have developed a paler colour. Even though I've been told by my doctor to expect to go darker if I'm not getting enough Hydrocortisone/Fludrocortisone . My skin has always been noticeably yellow, anyone else got a yellow ting to their skin colour?
Thanks for the heads up. All the posts on this site seem pretty old, but it's a good idea. I updated some of the information on the basics of Addison's. Our biggest concern right now is finding a doctor that has experience with children with Addisons. we've met with three doctors here in town (Columbus, Ohio) and plan on heading down to Cincinnati to meet with the pediatric endocrinology department. Glad to hear it's manageable. We just need to get things locked down from a medication standpoint and hopefully move forward.
Hi dgimple1, As far as I can tell, this site doesn't get a whole lot of traffic. Little traffic for those with Addison's any how. I'm sorry to hear your son was diagnosed and only 9 years old. I was diagnosed at age 13 with Addison's and I know how frustrating and scary it can be as a child when diagnosed with something no one really knows a whole lot about. Anyhow, I'm now a parent and can understand both the parent's side of dealing with a child diagnosed and the child's point of view. If you ever want to chat or ask questions, let me know. I've delt with Addison's for 22 yrs now and have had complications crop up through out the years. Good luck to you and your family. I hope doctor's are able to find a medication your son's body will absorb. Take Care, Leah Fedeli
Found this site recently and wasn't sure how often it saw traffic. My nine year old son was diagnosed with Addison's disease about seven months ago and we've been trying to get our hands around it. Normally, a daily dose of cortisone will help to regulate everything but his body is not absorbing the medication. We've moved on to prednazone but it didn't work as well as we would think. Still running additional tests.
Hi, I too have hypothyroidism and addison's disease and a previous endo of mine put me on b12 shots to be taken monthly. They worked fine, but I discontinued the shots after about a year. No specific reason I stopped, but I will also say that I couldn't really tell a difference when taking the shots and when not taking the shots. Not sure if I have a vitamin D deficency, but I don't drink milk, so I probably do. How did you end up with Addison's? Just curious. Never met anyone with Addison's and I was diagnosed about 16 years ago, when in the 8th grade. Leah
I have primary Addison's disease. I was diagnosed in 1999. I also have hypothyroidism, I am doing well. I recently got a new endo who said I have vitamin b12 deficiency. I am giving myself shots for this once a month. Anyone have this same experience? How about vitamin D defiency? How common is this to happen?
ALD Life is a patient support group and registered charity in the UK, we support patients and their families affected by Adrenoleukoystrophy (ALD) and Adrenomyelineuropathy (AMN) as well as patients with Addison's disease which in some cases will be caused by ALD.
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