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Addison's Disease

What is Addison's Disease?

Addison's Disease is a rare endocrine disorder in which the adrenal gland produces insufficient amounts of steroid hormones.


Addison's Disease is a rare endocrine disorder in which the adrenal gland produces insufficient amounts of steroid hormones.
Synonyms for Addison's Disease has not been added yet.
Primary Adrenal Insufficiency, Polyendocrine Deficiency Syndrome, or Tuberculosis, A rare cause is ald Adrenoleukodystrophy
There are several symptoms that affect people with Addison's Disease.
Name Description
Dehydration Dehydration
Low blood pressure Low blood pressure
Loss of consciousness Loss of consciousness
Hyponatraemia low blood sodium levels
Skin discoloration Skin darkening around the joints, back and gums.
Addison's Disease can be diagnosed with blood tests and medical imaging.
Diagnostic tests of Addison's Disease has not been added yet
Treatments of Addison's Disease has not been added yet.
Prognosis of Addison's Disease has not been added yet.
Tips or Suggestions of Addison's Disease has not been added yet.
References of Addison's Disease has not been added yet.
secondary addisons Created by kelleeelmerick
Last updated 11 May 2012, 02:43 AM

Posted by kelleeelmerick
11 May 2012, 02:43 AM

Just got secondary or pituitary Addisons diagnosis. Anyone else have that form? Thank you.

Pigmentation Created by RH90
Last updated 6 Apr 2012, 10:36 PM

Posted by RH90
6 Apr 2012, 10:36 PM

Just thought I'd ask if people could share their own experiences. I've just turned 22 and for over a year I've been developing vitiligo, strangely it's been on my nipples. They have always been quite large and very dark and they are noticeably white in patches now, has anyone had this? Also, stupidly for a while now (years) I have been under-dosing on my medication and have developed a paler colour. Even though I've been told by my doctor to expect to go darker if I'm not getting enough Hydrocortisone/Fludrocortisone . My skin has always been noticeably yellow, anyone else got a yellow ting to their skin colour?

Greetings and salutations Created by dgimple1
Last updated 13 Dec 2010, 03:06 PM

Posted by dgimple1
13 Dec 2010, 03:06 PM

Thanks for the heads up. All the posts on this site seem pretty old, but it's a good idea. I updated some of the information on the basics of Addison's. Our biggest concern right now is finding a doctor that has experience with children with Addisons. we've met with three doctors here in town (Columbus, Ohio) and plan on heading down to Cincinnati to meet with the pediatric endocrinology department. Glad to hear it's manageable. We just need to get things locked down from a medication standpoint and hopefully move forward.

Posted by lfedeli0420
13 Dec 2010, 02:59 PM

Hi dgimple1, As far as I can tell, this site doesn't get a whole lot of traffic. Little traffic for those with Addison's any how. I'm sorry to hear your son was diagnosed and only 9 years old. I was diagnosed at age 13 with Addison's and I know how frustrating and scary it can be as a child when diagnosed with something no one really knows a whole lot about. Anyhow, I'm now a parent and can understand both the parent's side of dealing with a child diagnosed and the child's point of view. If you ever want to chat or ask questions, let me know. I've delt with Addison's for 22 yrs now and have had complications crop up through out the years. Good luck to you and your family. I hope doctor's are able to find a medication your son's body will absorb. Take Care, Leah Fedeli

Posted by dgimple1
9 Dec 2010, 08:23 PM

Found this site recently and wasn't sure how often it saw traffic. My nine year old son was diagnosed with Addison's disease about seven months ago and we've been trying to get our hands around it. Normally, a daily dose of cortisone will help to regulate everything but his body is not absorbing the medication. We've moved on to prednazone but it didn't work as well as we would think. Still running additional tests.

vitamin b12 deficiency Created by sunlover
Last updated 4 Oct 2010, 06:22 PM

Posted by lfedeli0420
4 Oct 2010, 06:22 PM

Hi, I too have hypothyroidism and addison's disease and a previous endo of mine put me on b12 shots to be taken monthly. They worked fine, but I discontinued the shots after about a year. No specific reason I stopped, but I will also say that I couldn't really tell a difference when taking the shots and when not taking the shots. Not sure if I have a vitamin D deficency, but I don't drink milk, so I probably do. How did you end up with Addison's? Just curious. Never met anyone with Addison's and I was diagnosed about 16 years ago, when in the 8th grade. Leah

Posted by sunlover
22 Jul 2009, 12:11 AM

I have primary Addison's disease. I was diagnosed in 1999. I also have hypothyroidism, I am doing well. I recently got a new endo who said I have vitamin b12 deficiency. I am giving myself shots for this once a month. Anyone have this same experience? How about vitamin D defiency? How common is this to happen?

Community Resources
Title Description Date Link

ALD Life is a patient support group and registered charity in the UK, we support patients and their families affected by Adrenoleukoystrophy (ALD) and Adrenomyelineuropathy (AMN) as well as patients with Addison's disease which in some cases will be caused by ALD.


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Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit to enroll.

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evliyim 3 çocuğum var fizik öğretmeniyim malülen emekli oldum
I suffer from Addison's Disease and could use someone to talk to that also suffers from this. It seems hard to find others with this disease.
Carrier AMN, mother of adolescent boy with Addison-only type ald, EMT-I, paramedic intern
I became disabled from working as a Registered Nurse in 2005. In a few years, I developed over 9 diagnosis of various forms, and then Morgellon symptoms began. Through and just web surfin...
I am project manger for Uk charity ALD Life, I am also a carrier of Adrenoleukodystrophy, and have carrier symptoms similar to AMN. My son has Adrenoleukodystrophy and Addison's disease
I was recently diagnosed with Secondary Adrenal Insufficiency as well as Exercise Induced Anaphylaxis. Being active, staying in shape and playing sports are a huge part of my life, and part of my j...
I am Mom to 4 amazing kiddos....3 on earth and 1 in heaven. <p>&nbsp;</p> <p>&nbsp;</p>Jonathan was the oldest. He passed in 2000 due to ALD. It was a disease that I had never heard of before, (I w...
I am Dr. Tushar R. Desai working as the Director, School of Pharmacy and Dean, Faculty of Doctoral Studies & Research at RK University, Rajkot, Gujarat, India. I have 30 years of experience in acad...
Diagnosed with AMN Nov 2009 and Addisons in Dec 2002
A father of 3. Have been experiencing progression of this disease since 2001
I have a son with AMN. Showed Addisons at age 11 , miss dx'd untill 16 , diagnosed at 22 with AMN , in wheelchair at 23 , very successful business man in New York , now 31. Im a father still lookin...
Hi, I am the wife of an AMN patient. I look forward to meeting others like myself. I want to be a part of a group that is familiar with what I am going through, and I hope to be a valuable member o...
My son was diagnosed with Addison's disease around the time he turned nine in March 2010. Just trying to learn as much as I can about it as we have been struggling to find appropriate care.
I was diagnosed with Addison's Disease when I was in the 8th grade and I've lived with the disease for the last 16 years. I still don't totally understand all the affects the disease has on my bod...
I am a patient with the following rare disorders: primary sclerosing cholangitis, seccondary addison's disease, and a Chiari Malformation. <p>&nbsp;</p> <p>&nbsp;</p>I am also a student majoring i...
An X-ALD carrier with two daughters, both carriers. My eldest daughter has 3children, eldest grandson and b/g twins. Both of my grandsons have X-ALD. <p>&nbsp;</p>I think I'm developing mild AMN to...
I have recently been diagnosed with Addisons disease. I also have a chronic pain problem from 6 major back surgeries and Fibormyalgia. My life revolves around doctor's appointments and the pharma...
Hi. I'm Naphtali (Tali). I'm looking to talk with anyone about their experience--but I'm hoping to talk to queer people specifically. I'm finding that it's very difficult to find queer people to ta...

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Discussion Forum

secondary addisons

Created by kelleeelmerick | Last updated 11 May 2012, 02:43 AM


Created by RH90 | Last updated 6 Apr 2012, 10:36 PM

Greetings and salutations

Created by dgimple1 | Last updated 13 Dec 2010, 03:06 PM

vitamin b12 deficiency

Created by sunlover | Last updated 4 Oct 2010, 06:22 PM


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