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Living with CSNB

Antg94 Message
22 Sep 2011, 12:43 PM

This is for anyone who doesn't just want to know about the eye disorder but any lifestyle implications. i have CSNB and I am willing to answer any questions.
moonhump Message
14 Oct 2011, 03:13 AM

Thank you so much. How do I reach you to talk with you. You are the only person in the world who has responded to this request, and I am thankful. Please let me know how to reach you. If you prefer to talk online I understand. My little boy is almost 3 and I need to see how this is going to affect all of our lives. More importantly how is this going to impact him? What do we take for granted that he cannot do? What can we do to help or encourage him? His prescription for short sightedness is pretty significant but he does really well with his glasses. Of course I have a million questions so any insight would be helpful. Looking forward to hearing from you.
Antg94 Message
16 Oct 2011, 12:52 PM

you can contact me through my new website hope i can be of some help
moonhump Message
19 Oct 2011, 03:07 AM

Thanks so much. I will e-mail you there in the next day or two.