Cookies help us deliver our services. By using our services, you agree to our use of cookies. Learn more

Facebook page for Lateral Meningocele Syndrome

Vhare85 Message
18 Aug 2017, 04:16 PM

Please help spread the word about our new page, Living with Lateral Meningocele Syndrome, specifically for Lateral Meningocele Syndrome. This syndrome is so rare there are less that 20 (as far as we can tell) diagnosed with this syndrome. We know what it is like to desperately search for a diagnosis and fight an almost unknown battle for our child. There are many people going undiagnosed for years or suffering alone in silence. If we could help just one person or family find what they are looking for, all the hard work out into this page will be worth it. Thank you and much love to you all! Here is a link to our page