Hello, my name is Heather and my youngest daughter Abigial was born with Jenjunial Atresia also known as Apple Peel Syndrome. I was excited about this site because I have yet to meet or talk to anyone else who shares our experiences. I hope to hear from people who understands.

Hi my name is Elizabeth Gonzalez i also have a baby girl with jejunal atresia she is 1 now and i have been to hell and back so if anyone can be kind and share there story i will apreciate it and i will also shre mine .

Hi there! I was born with jejunal atresia, and have lived with it for my entire life. Am lucky that I have not had any serious complications from it. It's great to find a forum like this.

I was born with jejunal atresia. I've had two sugeries, but haven't had any major complications since I was 18. I really didn't know how rare this was until recently searching the internet for information.

to the people that were born with jejunal atresia i really have so much to ask you that i dont know how to begin. I am so happy to hear that someone other then my baby girl has this because it means there is hope. my email address is Elymar1019@yahoo.com if you can please contact me and share some of your stories that would be great.

i would like to know how much of your intestine do you have left and did you need a transplant? did you need tpn ? plase please get back at me

Hi Cdwyer! Sorry to be overly personal - but what type of complications have you experienced ? I have been experiencing bowel problems, which can be attributed to the atresia, but I am very interested in hearing what your complications were. Elymar1019: I have sent you an e-mail! :)

Lich thank you so much for takin the time to answer. You are trully a piece of the answer to my prayers. Its people like you that make the world so much better.

wow ive only just come across this site! im laura and im a 20 year old female from the uk and i was born with jejunal atresia and had to had 2/3rd of my intestine removed due to most of it having gone gangreen. this was down to the fact i was born on a bank holiday and no-one could diagnose what was wrong with me due to no doctors around in the hospital! after that i was still sent to 3 different hospitals to finaly find what was wrong and spent the first few months of life in hospital. i had yearly check ups until i was 16 when they decided every thing was fine! only problems i have is not being able to eat alot in one go, so my meals are kiddy sized! i also feel nauseas when im ill but never seem to vomit which ive been told is due to the surgery i had. as it is also a hereitory abnormalily during my pregnancy with my daughter i had to have alot of extra appointments and scans and blood tests which wernt fun but luckily my daughter hasnt inherited it which im glad about! when they operated they also stiched me up from the inside so my scar is rather odd lol

I havent' been on here in awhile and am suprised to see how many people have actually responded to this forum. My daughter was born in 2003 6 weeks premie, we were told that the odds were questionable because it is so rare. She had two rare occurances at once. She just turned 6 and continues to have stomache aches when she eats and she also has to eat small portions at a time. We were told 3 years ago that she would have to have another surgery to correct the scar tissue which is still swollen from her surgery when she was a day old. They have postponed it because the more surgeries the more scar tissue. If anyone wants to talk about their experiences I would love to here from you. my email is brooklynabbey@yahoo.com The internet is rather vague due to this being a rare disorder. Hope everyone here is healthy and doing well.

heathero879: i also get alot of stomach aches after eating! especialy after more rich tasting foods such as roast dinners with gravy etc, that really sets me off :(, i tend to stick to very small amounts now to try and prevent it!

Thanks laurajane89. I noticed that you have been living with this for 20 years. Have the doctors told you how this will effect child bearing? I know that's the least of anyone's problem, just curious. I have tried to search it to find out as much about this disorder but can't find much. Wish you all the best.

i was fine having my daughter :) all they had to do was just book me in for an extra couple of scans at 11 weeks, 14 weeks, 18 weeks, 20 weeks, 32 weeks, 34 weeks, 36 weeks and 40 weeks instead of the normal 12 and 20 weeks, i had the extra as they were all just to make sure that the baby wasnt going to be to big and cause any damage to scarring and to also check she didnt have any signs of jejunal atresia as it is heredatory. they also like to prefer NOT to give a C-Section on people who have jejunal atresia because of the possibility of causing damage. if u have any other questions please feel welcome to email me at laura_jane_89@hotmail.co.uk x

Hi I'm sorry I have just found this and I'm not sure anyone is still around and using this site but I'm a pretty desperate mum so I'm going to ask anyway.....my son is three and born with jejunal atresia. Surgically repaired at 3 days old. He is dairy and soya intolerant so diet is restricted. He is currently having a lot of trouble going to the toilet. He's on three different laxatives, but the doctors are saying it's not related. He's constantly crying he needs to go but just can't. It takes days. He says he tummy is "big". He also has development delay and they are looking into autism so I feel they are shrugging it off as a behaviour thing. I've been told from his doctors that basically you either get short gut syndrome from the surgery or your fine. There is no in between.... So I guess I'm asking if you think I'm just a paranoid mum or if he really could be having effects from the atresia. As you can imagine it's not been easy finding other mums or anyone for that matter who even knows what this is to ask! So I hope someone is still here :/

Hi Nathaliesayers, I just saw your message. I am sorry that nobody replied to it and I just wanted to tell you that if you still need to talk, you can contact me at alexdido23@ gmail.com I hope you got some answers regarding your little boy's symptoms. One thing is for sure, don't always listen to what your doctors say, follow your instincts as docs don't know everything. I would love to share my experience with you too. I still struggle a lot with my 21 months old girl who was born at 32 weeks with jejunal atrasia and had 1/3 of her gut removed. She does not suffer from constipation but vomits all the time (sometimes twice a day) almost everyday. She also suffers from reflux and It breaks my heart to hear her every night moaning with pain. Anyway, if you read me, please get in touch x

Hi Nathaliesayers, My daughter who just turned 5 about a month ago was born at 32 weeks due to jejunal astresia. She has surgery the day after she was born and hasn't had any problems ever since ( knock on wood). I am not sure if she will have any problems as she gets older but as of right now, she is s picky eater, which is probably typical at her age. You may email me at deidrehunt1@gmail.com, if you have any questions or would like to chat.