Cookies help us deliver our services. By using our services, you agree to our use of cookies. Learn more

Lateral Meningocele Syndrome

jennifer0905 Message
13 Jul 2012, 12:48 PM

Does anyone out there have this syndrome or know of someone who does.
grandma1950 Message
11 Aug 2015, 03:39 AM

My 3 year old grandson has just been diagnosed with LMS. There is so little information. I can't find any prognosis or what to expect in the future.
Vhare85 Message
17 Aug 2017, 05:09 AM

My daughter will be 3 in October and has lateral meningocele syndrome. The prognosis is good in general. I considered it a win compared to some if the other syndromes she could have had... Definitely Google Lateral Meningocele Syndrome. Here is a link to an article my daughter's neurosurgeon helped write about my daughter 

We would love to hear from anyone who might have or know someone who has this very rare syndrome. As far as I know, there are less than 20 people in the world with it.