X-Linked Lymphoproliferative Disease is a rare genetic immunodeficiency disorder characterized by an underactive or overactive immune system.
Hi all I am a family friend of 10 yo affected boy currently hospitized for severe diarrhea (continuos episodes up to 30 discharge per day) which seems unstoppable. Doctors are confused and situation critical. Nothing seems to work. Has anyone had any past experience of similar symptoms and , very very important, is there anyone able to indicate a medicine or procedure which worked well to stop diarrhea ?? Parents are desperate and doctors have tried various therapies but nothing seems to work. Confidently looking for some info.. thanks in advance for anything you may tell me. Dany
|XLP Research Trust||
Founded in 2005, the XLP Research Trust exists to promote and fund research into the cause, management, symptoms and cure for XLP, provide a point of contact and support for those families affected by XLP, and raise the awareness of XLP amongst the medical profession and the general public.
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