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Trisomy 11

What is Trisomy 11?

Duplication of all or part of Chromosome 11, with or without a translocation of the duplicated material onto another chromosome. Individuals with chromosome disorders often have developmental delays, seizure disorders, heart defects, etc.

 

 

Duplication of all or part of Chromosome 11, with or without a translocation of the duplicated material onto another chromosome. Individuals with chromosome disorders often have developmental delays, seizure disorders, heart defects, etc.

 

Acknowledgement of Trisomy 11 has not been added yet.
Prevalence Information of Trisomy 11 has not been added yet.
Synonyms for Trisomy 11 has not been added yet.
Cause of Trisomy 11 has not been added yet.
Symptoms for Trisomy 11 has not been added yet.
Diagnosis of Trisomy 11 has not been added yet.
Diagnostic tests of Trisomy 11 has not been added yet
Treatments of Trisomy 11 has not been added yet.
Prognosis of Trisomy 11 has not been added yet.
Tips or Suggestions of Trisomy 11 has not been added yet.
References of Trisomy 11 has not been added yet.
Welcome! Created by kc0509
Last updated 24 Jul 2011, 05:38 PM

Posted by lauriemom5
24 Jul 2011, 05:38 PM

we live in wisconsin

Posted by kc0509
23 Jul 2011, 01:21 PM

Wow! I almost had forgotten about this forum. Hi! The CDO forum on Yahoo is much more active (Chromosome Disorder Outreach) if you haven't checked it out already, it is great. We are in Massachusetts, where are you?

Posted by lauriemom5
12 Jun 2011, 08:16 PM

my daughter is the same way she doesnt speak but she is very expressive and knows what she wants and what she doesnt want she didnt walk till she was 6 she also eats pureed food she doesnt really chew she very orally defensive

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Community External News Link
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03/20/2017
Chromosome Disorder Outreach

03/20/2017

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Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Welcome!

Created by kc0509 | Last updated 24 Jul 2011, 05:38 PM


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